findingseeking wrote:i really dont think i have gluten intolerance. i have trialed this over and over again. i have been militant about it and went back to gluten and found no negative changes over 3 month periods.
i have been tested for the antibodies and have no inflammation to be seen. ( tested while eating gluten so it would show up)
im a bit nervous for the emg, just because i have dislike tests. i have had 2 mri's done this year and several CT's done with contrast. im so sick of being probed and prodded. im sick of being sick. im sick of it being an invisible illness and getting little to no help from MD's and people in my life thinking im just too sensitive. i want to be well, or to at least know whats wrong and go from there.
this likely is not ms, so i'm sorry to post here. but some of my symptoms are similar and i just feel at the end of my rope, ya know?
im 32, its been 3 full years of pain. and i have a little kid who relies on me.
whatever it is going on inside me, im just too tired.
sometimes i just wanna stay in bed and say eff life, im taking a week off, but life doesnt work that way.
sorry to whine.
findingseeking wrote:i ended up back in the ER. the day dollowing my emg my face went numb but felt like it was burning too if that makes sense.
my right hand is markedly weaker than it ever has been and i have to assist it with my left hand and use my left hand for normal tasks i would use my right hand for.
my eeg is on wedsday.
i had a CT scan which at least shows i dont have a brain tumor, but thats and a massive stroke/bleed was all it ruled out and those were never huge concerns.
i had a few horrible nights where i couldnt sleep because the spasms were so bad and then my body would tingle pins and needles.
the regular ER dr brought up MS and the neuro i saw after dismissed it. so who knows. i know interpretation differs from md to md.
i may have to wait months for an MRI if i dont pay privately.
one of my legs feels achy and like a tickle is in it constantly and a bit less strong but not so much that my gait is really off. it just a constant sensation that is bothersome.
i think the most frustrating thing is when i asked how i can reduce these symptoms he just shrugged and didnt know and made it like it wasnt a huge deal since its not life threatening. i guess my daily quality of life isnt a concern to that neuro.
i dont have the blodd work with me but they did test for all dietary type imbalances and i think for heavy metals and it came back clear. i am going to see another neuro on weds as i had planned before to for my back and i am will obtain all my results this week to bring over to him and will have them then.
i guess its a wait and see thing now. i cried last night because i couldnt use a fork properly. and couldnt get highlights ( im a hairdresser) done as i normally do at work.
is there anything that helps makes these symptoms lessen? is there anything you take that helps that i could possibly get?
right now all i can do is take valium when the twitching gets really bad and that doesnt even work it just lets me sleep thru it.
Users browsing this forum: No registered users