missmissmissmiss wrote:Hello folks, I thought I would introduce myself here as I am undiagnosed. But I know. I do.
The first thing, looking back, was episcleritis about 20 years ago. The eye dr told me to speak with my GP, as this was often a symptom of auto immune disease. Nothing came of that.
The next thing was horrendous injuries, frozen shoulder, tennis elbow, carpal tunnels, piriformis pulled, coccyx pain. I felt that a right hypochondriac, always moaning about some pain or other. Eventually I was sent to the hospital and given a diagnosis of hypermobility. I accepted that, it seemed to fit.
More recently I've noticed that when I get fluey type symptoms, fatigue, achey joints, feeling unwell, I get tingles and twitches - started in my legs, but now are all over, rapid fire shot, never the same place. I told the GP, whilst he looked interested, he didn't do anything other than bloods, which came back low vitamin D, high white blood cells. He was more interested in whining about my weight, and blood pressure. I know both are a problem, but I am dealing with them. When I get an attack, I tend to drink wine to comatose me - stupid, I know.
In the last few months I've had a kind of wet feeling on my right thigh, worse when I am standing for long periods.
I went back to the GP last week to make the neurological link - I had thought everyone had tingly and twitchy muscles when they were poorly, I really did. The GP sent me off for more bloods a couple of days ago. Last week I was off work Weds, Thurs, Fri, went back in on Monday, Monday night got a hammering headache every time I moved my eyes. Tuesday I got up and went to work, head hurt all day. This morning I've given up again, I can't work. I am a teacher, in a very challenging school.
I read about misaligned atlas bone, and thought may'be this is what the problem is (also thinking sunshine, vitamins etc in desperation to take some control over my body with knowledge) I went to see a chiropractor today to see if she could realign, and my blinding headache would go. No such luck. In fact she seemed pretty on the ball, saying I needed to get the GP to refer me to a neurologist, as no trapped neck nerves would cause leg twitching. Nevertheless, mindful of the £50 she could rinse me for, she duly told me my neck was stiff, and cricked it several times to loosen the bones. Of course, it is soooo bad, that I have to go back tomorrow. I don't think I'll bother.
I'm worried. I feel pretty certain that I have MS. Everything that I've read, I just find myself saying 'yes' 'yes', even down to the tight feeling under ribs. I see my GP again on the 15th, and will ask for the neurology appointment. I am scared that the quality of my life will go rapidly downhill, starting with my job being out the window. My job and my grandchildren are all there is.
Thank you if you got this far, it's helped me to write it all down in the order it happened!
Blood tests are commonly employed to check for vitamin deficiencies, toxic elements and evidence of an abnormal immune response.
Depending on your individual situation, your doctor may request certain laboratory tests to identify potentially treatable causes for neuropathy. These include tests for:
Vitamin B12 and folate levels
Thyroid, liver and kidney functions
Oral glucose tolerance test
Antibodies to nerve components (e.g., anti-MAG antibody)
Antibodies related to celiac disease
Hepatitis C and B
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