Getting closer to a diagnosis...

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.

Getting closer to a diagnosis...

Postby TonyNZ » Sat Mar 08, 2014 1:51 am

Hi There,

This is the first time that I am going to blurt all of this out to complete strangers...

I am a 48 year old male originally from the UK and my mother had MS (she passed on 10 years ago from pneumonia). Neither of my 2 siblings display the same symptoms as I, and I am as yet undiagnosed.

After 3 years of extremely varied healthcare-quality in 3 countries I have finally moved my wife and son to New Zealand to settle down and hopefully get to the bottom of whatever ails me.

My symptoms are: numbness in both lower legs and feet, severe balance problems, fatigue, depression and erectile dysfunction. I have spent the last 2 years working in Qatar where various doctors decided I had Spondylosis and Sciatica plus a twisted spine.... After 2 MRI's a Neurologist concurred with that diagnosis as she did not see any evidence of lesion activity in my spine. Qatar gets really hot, getting as high as 50 degrees centigrade and I found (as does the rest of the population!) that being outside for any length of time wrought havoc with my internal cooling and general mobility - returning inside to AC would always alleviate the symptoms. Now that I am in New Zealand which is dramatically colder, I do not see any difference in any of my symptoms at all. I have had another MRI a month ago and still no diagnosis. Now I am scheduled for a 4th MRI in 3 days time. I must say that I am getting despondent with the inability of the Medical profession to come to a conclusion of some kind. Prior to Qatar I lived in South Africa for a year and on-and-off in Italy after that (all for work). I have had litres of my blood analysed in all 3 countries and been prodded and poked by doctors, all seemingly with the same quizzical expression on their faces 'what could it be?'...

My mother sort of self-diagnosed her condition 20 years ago as doctors back then seemed to be reluctant to come to any conclusion, and I am beginning to wonder what exactly has advanced 20 years on? There does not seem to be any hurry to reach a definitive diagnosis. I have started on the Wahl diet and recently came across the Swank/Jelinek diet which seems like it will suit me more. As I was mis-diagnosed in Qatar, I had severely curtailed my exercise regimen which has done me no good at all and will take a while to rectify. Now I perform stretching and cardio workout twice daily and if nothing else, makes me feel better mentally.

My poor family have battled to deal with my mood-swings and mobility issues and I hope that on Tuesday I have an answer that will at least allow me to focus in the correct direction.

I wish courage and strength to all others who might be waiting for a diagnosis, I empathise with you all as I well know exactly how debilitating this can be for yourself and your family.

Regards!

Tony King
TonyNZ
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Re: Getting closer to a diagnosis...

Postby jimmylegs » Sat Mar 08, 2014 6:34 am

welcome tony :) hope your new home turns out to be a good one for getting answers.
question: do you have your own copies of all the prior blood work that has been done?
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Re: Getting closer to a diagnosis...

Postby TonyNZ » Sun Mar 09, 2014 2:13 am

hi jimmylegs. I just looked at your incredible 'post'!! I will study it at length.

I do not have all the results of the blood-work that has been done for me. I miss the results from Qatar and Italy; however they were very thorough here in NZ when I went initially (a month ago) I will have to pursue that further and after reading your post I understand better why.
TonyNZ
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Posts: 16
Joined: Sat Mar 08, 2014 1:09 am

Re: Getting closer to a diagnosis...

Postby jimmylegs » Sun Mar 09, 2014 5:04 am

lol it is a bit of a novel isn't it heheh

I hope you will be successful getting copies of your bloodwork, so that you can investigate whether there are any gaps in testing or issues with interpretation :)
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