I wish I could read an MRI

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.

I wish I could read an MRI

Postby christobelle » Tue Apr 01, 2014 5:28 am

That's all.

I wish I was a doctor.

I wish I could work out what the hell is going on.

I wish that when I'm at work and my chin starts twitching I knew why.

I wish I knew why my legs suddenly felt as though someone had injected them with lead.

I wish I Knew why everything is going to pot. That's all.

I'm just a bit over it all.

Like completely.

And still have to look after a 5, 4 and 3 year old by myself. And work.

I'm just so tired of it all. And want to know what the actual hell is going on.

Sorry. Bit of a rant. Just waiting for the appointment at the MS clinic. And then see what happens.

Wish I knew so much more than I know.
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Re: I wish I could read an MRI

Postby THX1138 » Tue Apr 01, 2014 6:25 am

christobelle, you have one big advantage over most doctors in finding out how to deal with your challenges. That advantage is that you have an open mind and want to learn. :)
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Re: I wish I could read an MRI

Postby christobelle » Wed Apr 02, 2014 1:09 am

Thanks THX1138. My mind is as open as is humanly possible right now lol.

I'm just so frustrated with it all. And now my walking is affected it is really starting to bother me. These legs aren't mine. They can't be. They feel so foreign. I could swear I must have run a marathon yesterday they are that heavy and sore, and they are non-stop twitching now. I feel wobbly and slow and going up the stairs today was horrid. I feel people just must be looking at me down the street. I came close to falling on several occasions. It is just ridiculous that I have not yet got an answer as to why. Well, in my opinion it is. I guess I can't really expect all that much because doctors haven't gone through this entire thing with me. They have really only jumped back on the ship in the last few months.

Anyway, sorry for whining. I just want to know why my body seems intent on fighting against itself to function.

So. Exhausting.
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Re: I wish I could read an MRI

Postby ElliotB » Wed Apr 02, 2014 1:55 am

My dad had MS about 40 years ago. I have found that in general, my doctors don't really know much more about my MS than his did back then. But the good news is that much more is known about managing MS. There are many things you can do to help yourself feel the best possible. Through diet, exercise, lifestyle change and DMDs, MS can become manageable [for many] and you can probably feel much better than you do now. There is a wealth of knowledge on this site.

Hope you feel better soon!
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Re: I wish I could read an MRI

Postby christobelle » Wed Apr 02, 2014 4:33 am

Thanks ElliotB. I have already changed my diet but it could still use work, exercise has been horrendous for me so I now need to try to explore other alternatives that don't raise my body temperature (like pilates and yoga I guess), lifestyle changes have been forced upon me, and I don't know what DMDs is…..lol.

I have been slowly trying to explore the site. I can see that there are numerous posts, and I would love to get right into reading them. Having a bit of trouble with my eyes of late so extended reading isn't really working so well right now.

I'm sure I can feel better. I certainly want to. And hope I do.

Sometimes it is hard to be optimistic and positive when it feels as though your body is failing you in every way. Yet you still have to keep going.

I'm not a negative person as a general rule but I tell you what, these last few months have been quite possibly the most challenging in my entire life.

As a side note, with your father having had MS, are you able to see parallels between what you are experiencing now and what you would have seen him experience then, without having that first hand experience?
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Re: I wish I could read an MRI

Postby NHE » Wed Apr 02, 2014 6:13 am

christobelle wrote:Thanks ElliotB. I have already changed my diet but it could still use work, exercise has been horrendous for me so I now need to try to explore other alternatives that don't raise my body temperature (like pilates and yoga I guess), lifestyle changes have been forced upon me, and I don't know what DMDs is…..lol.


DMD stands for 'disease modifying drug' such as Avonex, Betaseron, Copaxone, Aubagio, Tecfidera, etc.

Please see the following post in the Forums FAQ for a helpful list of commonly used acronyms.
site-support-f2/topic5284-15.html#p210825
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Re: I wish I could read an MRI

Postby christobelle » Thu Apr 03, 2014 5:13 pm

Oh thanks very much for that!!! incredibly helpful!!!
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