I began having symptoms in early February which at first alarmed me, but which I quickly dismissed as being something benign. I was having trouble seeing in a vague sort of way and I had two days of numbness in my extremities and face. Then a month later, while the vision had deteriorated into double vision and an extreme sensitivity to light, the numbness returned. Since that time, I have experienced heat intolerance, confusion, random muscle weakness and fatigue, more and more numbness and other paresthesia symptoms (burning, tingling, electric-shock type feelings, etc.), and dizziness.
All of my vision and paresthesia symptoms generally get worse in the evenings.
My PCP referred me to a neurologist (an MS specialist), but I wasn't having any symptoms other than the vision issues at the time of the appointment. The neuro did all of the usual tests and said his level of suspicion for MS was low, but he could see that I was clearly concerned so he ordered an MRI and an SSEP. My PCP ordered bloodwork and referred me to an opthalmologist. I haven't heard anything back on the bloodwork, but I did see the opthalmologist today.
She said my optic nerves looked healthy, my vision was fine, and that she couldn't see anything that would explain why I have double vision.
I am so frustrated with no one being able to find anything and don't know which I fear more - finding something on the MRI or not finding any explanation for my symptoms. I don't want a chronic neurodegenerative disorder, but if I have one, I want them to find it, or at least find something to explain why I'm having such weird symptoms.