heatherlisa wrote:Hi all, I'm a 31 year old mom and one of my boys has Autism. I mention this because there seems to be a link between moms with autoimmune issues and having children on the spectrum. I treat my son with diet and alternative treatments and he has reacted well to that.
I've been falling apart for years now. I admit that I am the worst at taking care of myself. Before going to my doctor last summer with extreme leg pains and numbness/tingling/weakness in my arms, I hadn't gone in a few years. That was a bad "flare-up"...it lasted two weeks. And then it went back to just being sporadic (which it had been for years before that appt). Until I just had another "flare-up" again. In addition to the pain/tingly/weakness/stiffness/numbness in my limbs I also have had increased urination, issues with feeling dizzy and seeing stars, floaties/a film in my eyes that hasn't gone away in years, numbness around my nose and mouth, blurriness in my peripheral vision, chronic fatigue (but I'm a working mom with two boys with varying special needs, i volunteer and am an advocate for other families in the area, I've always just wondered if I put too much on my plate). I always feel like I keep getting "dumber" for lack of better words lol. I have issues with word retrieval and memory. Just this week while working with a client I totally blanked on the words of the Itsy Bitsy Spider. Numerous times a day I forget what I'm doing (brain fog). I just can't word it any other differently than I feel like I have contracted ADD in my adult life and have lost some points in my IQ. Just four weeks ago have realized I can no longer hang prone on a yoga ball because when I come back up I get an instant migraine-like headache as well as see stars and feel sick (I'm a pediatric occupational therapy assistant and I do this often in my line of work ). Family history of diabetes, celiacs, brain tumor, fatal stroke before 50, and perhaps an aunt with MS or lupus or something of the sort but she hasn't been diagnosed.
I think I got it all in there. Went to the doctor to finally ask about these symptoms four weeks ago (ironically right before my latest "flare-up") because I'm newly married and my husband and I have been trying to get pregnant for nine months (my boys are not his biologically) and I realized I should probably really check into my health for once. She ordered a urine test for diabetes, a CBC, CMP, ESR, lyme, and a thyroid test (she was leaning towards RA). Everything come back just fine. She then ordered me an MRI. That is scheduled for this upcoming Tuesday.
I'm a little scared. And a little baffled on whether I want there to be something so I'm not imagining all of this or for there to be nothing because of course I want my life to be as simple and healthy as possible.
I really wanted to just talk to someone who maybe has gone through this before. And also wanted your opinion on whether I should try to get my name on a neurologist's wait list? I don't really know if I'm doing what I should be doing right now. The MRI seems to be a good point? My regular doc says if this comes back with no signs of MS she will refer me to a rheumatologist- is that the right route? I know this could be lupus or a gazillion other things so I understand why she would do that. But also knowing what I know about treating my son's autism compared to what his regular pediatrician has suggested in the past....well I have become leery of traditional medicine.
Please note that the first blood test the U of Chicago suggests is for vitamin B12. I definitely think this is the place to start. There have been several malpractice cases won (for several million dollars each!) when doctors did not look for vitamin B 12 deficiencies and patients went on to develop irreversible neurologic damage.Blood tests
Blood tests are commonly employed to check for vitamin deficiencies, toxic elements and evidence of an abnormal immune response.
Depending on your individual situation, your doctor may request certain laboratory tests to identify potentially treatable causes for neuropathy. These include tests for:
Vitamin B12 and folate levels
Thyroid, liver and kidney functions
Oral glucose tolerance test
Antibodies to nerve components (e.g., anti-MAG antibody)
Antibodies related to celiac disease
Hepatitis C and B
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