Seuriu wrote:I just got back from seeing a second neurologist (this time an MS specialist) and although she was very nice and thorough I'm upset that I don't have an answer for everything that's going on. The last neurologist that I saw tried to tell me that my symptoms (including foot drop and vision colour loss) were due to fibromyalgia but my rheumatologist disagreed and said that I needed to see a different neurologist. I've had an MRI and there is 1 small spot but nothing defining, so she ordered another MRI. She says that if the next MRI comes back normal then we can rule MS out. She also ordered some tests for auto immune diseases.
My symptoms have been coming and going over the past 2 years, lasting from a few days to a few months and they include foot drop, vision colour loss in right eye, pain when moving eyes side to side, nerve pain in legs, muscle spasms and stiffness in legs, intention tremors, shakiness, difficulty thinking and speaking, bladder problems, numbness and tingling in my arms/hands, and generalized numbness from my waist down.
What could this be if it isn't MS? It has to be SOMETHING right? This doesn't just happen for no reason...
Welcome to ThisIsMS, Seuriu.
With the symptoms you described, MS is always a possibility until the other conditions that share the same symptoms are ruled out. MS is an exclusionary diagnosis. At the present time, all your symptoms could also be due to a vitamin B 12 deficiency. Any of your doctors can order the tests; ask your GP, your rheumatologist, both of your neurologists.
Numbness/tingling in the legs and arms is the textbook definition of "peripheral neuropathy." This is a common symptom in MANY conditions. In investigating the cause of peripheral neuropathy, the University of Chicago suggests the following:http://peripheralneuropathycenter.uchic ... #bloodtest
Blood tests are commonly employed to check for vitamin deficiencies, toxic elements and evidence of an abnormal immune response.
Depending on your individual situation, your doctor may request certain laboratory tests to identify potentially treatable causes for neuropathy. These include tests for:
Vitamin B12 and folate levels
Thyroid, liver and kidney functions
Oral glucose tolerance test
Antibodies to nerve components (e.g., anti-MAG antibody)
Antibodies related to celiac disease
Hepatitis C and B
Please note that the first blood test the U of Chicago suggests is for vitamin B12. I definitely think this is the place to start. There have been several malpractice cases won (for several million dollars each!) when doctors did not look for vitamin B 12 deficiencies and patients went on to develop irreversible neurologic damage.
You may find information in the following video useful: "Everything You Want Your Doctor to Know about Vitamin B12"http://www.youtube.com/watch?v=BvEizypoyO0
I highly recommend this 50-minute documentary from the filmmaker Elissa Leonard, featuring Sally Pacholok, RN, BSN & her husband Jeffrey Stuart, D.O. (authors of the book, Could It Be B12? An Epidemic of Misdiagnoses); Lawrence Solomon, M.D., hematologist with Yale Medical School; Ralph Green, M.D., hematologist at UC Davis; and Donald Jacobsen, PhD, at the Cleveland Clinic (Homocysteine Research Lab).
@1:23 "The neurological manifestations well precede the hematological manifestations."
@1:46 "In 1948 scientists isolated a red crystalline pigment and named it vitamin B12. It is a primordial molecule responsible for the health of all the DNA in all our cells. The Framingham Offspring Study suggests 40% of Americans have suboptimal B12."
By the way, alcoholic beverages depletes vitamin B12 – not good, if you are even borderline B12 deficient.
If you are found to have a vitamin B 12 deficiency, it is easily treated with B12 supplementation; when it comes to MS, the cause is unknown and the "experts" have no effective treatment for it.