Three Doctors and a Nurse Practitioner Later....

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.

Re: Three Doctors and a Nurse Practitioner Later....

Postby jimmylegs » Fri May 23, 2014 3:08 pm

mine weren't even in the brain at all hehe.
odd sx? no dx? check w/ dietitian
DRI=MINIMUM eg bit.ly/1vgQclQ
99% don't meet these. meds/lifestyle can affect levels
status can be low in ms & other cond'ns
'but my results are normal'. typical panels don't test all
deficits occur in 'normal' range
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Re: Three Doctors and a Nurse Practitioner Later....

Postby Alainaluvsu » Fri May 23, 2014 5:24 pm

I mean the ones found in the brain :)
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Re: Three Doctors and a Nurse Practitioner Later....

Postby jimmylegs » Fri May 23, 2014 5:48 pm

yes i noticed. hence the comment
odd sx? no dx? check w/ dietitian
DRI=MINIMUM eg bit.ly/1vgQclQ
99% don't meet these. meds/lifestyle can affect levels
status can be low in ms & other cond'ns
'but my results are normal'. typical panels don't test all
deficits occur in 'normal' range
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Posts: 10423
Joined: Sat Mar 11, 2006 4:00 pm

Re: Three Doctors and a Nurse Practitioner Later....

Postby Alainaluvsu » Tue Jul 15, 2014 12:40 pm

A little update.

I've been relatively fine since I last posted, but this weekend I've gone through a hard time.

It started Saturday. I saw a black hole in the middle of my vision for a split second. It was an irregular shape but it went away too quickly to see which eye I saw it out of. After that, I'd see a lot of split second abnormalities (like a red sharpie mark in my peripheral vision). My eyes started burning around the rims.

The next day my legs felt very stiff and weak. As time went on, they got extremely spastic, especially my left leg. I lost bladder control for a few hours, and had small leaks. I went to take a shower and I was nearly falling while trying to shower. Later in the day, I completely lost my ability to walk. Fatigue was heavy, and I took a 3 hour nap and was still sleepy when I woke up.

I have been unable to walk since, but today I've improved in strength. I also saw the doctor. Apparently I was never referred to LSU by that nurse practitioner. So now I'm at least going to see a neurologist. Whatever this is, it sucks. I don't know why I have to go through this, and I need some advice right now about how I'm going to live like this.
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