Welcome to ThisIsMS, dmcomp. Since your last sentence invites ideas, I offer you mine.
You may not have MS; there are many other conditions with similar symptoms to rule out first. Somewhere along the line I hope a doctor has ordered all the following blood tests suggested by the University of Chicago: http://peripheralneuropathycenter.uchic ... ndex.shtml
Blood tests are commonly employed to check for vitamin deficiencies, toxic elements and evidence of an abnormal immune response.
Depending on your individual situation, your doctor may request certain laboratory tests to identify potentially treatable causes for neuropathy. These include tests for:
Vitamin B12 and folate levels
Thyroid, liver and kidney functions
Oral glucose tolerance test
Antibodies to nerve components (e.g., anti-MAG antibody)
Antibodies related to celiac disease
Hepatitis C and B
Be sure to ask for copies of all test results and keep your own file of them at home. (Don't settle for a nurse telling you everything is "fine.")
You stated, "My B12 was a little high," – the serum B12 test alone is not adequate to rule out a possible vitamin B12 deficiency; I wonder if all the other tests were done to rule this out (serum B12 test, serum folic acid test, serum homocysteine test, urinary
methylmalonic acid test). A B12 deficiency can cause many symptoms like yours. And, remember, there can be a functional deficiency in the tissues even when there appears to be no B12 deficiency in the blood. Would your GP cooperate with a therapeutic trial of B12 injections, one a day for a week or perhaps once a week for 10 weeks?http://www.youtube.com/watch?v=BvEizypoyO0
I highly recommend this 50-minute documentary, featuring Sally Pacholok, RN, BSN & her husband Jeffrey Stuart, D.O. (authors of the book, Could It Be B12? An Epidemic of Misdiagnoses
); Lawrence Solomon, M.D., hematologist with Yale Medical School; Ralph Green, M.D., hematologist at UC Davis; and Donald Jacobsen, PhD, at the Cleveland Clinic (Homocysteine Research Lab). So many of your symptoms seem to fit the following list (and many others are mentioned in the video).Signs and Symptoms of B12 Deficiency:
Tingling/NumbnessSore Mouth or TongueFatigue
Abnormal Gait Mental Impairment
(Your memory?)Visual DisturbancesMigraine
(Your headaches?)Orthostatic Intolerance
(Your heart rate regulation problem?)
(This is swelling.)
Stomach and G.I. Problems
("2 bouts of ischemic colitis at the age of 48 and 49")
Blood AbnormalitiesNeurological LesionsLimb Movement Disorders
Thoughts of Suicide
Testing for a gluten intolerance (or even celiac disease) is also important because gluten (found in wheat, rye, or barley) can damage the intestines in some people and interfere with the absorption of nutrients in the food.
Dr. Amy Myers, M.D., spoke on gluten sensitivity on The Dr. Oz Show: http://www.doctoroz.com/episode/gluten- ... t-epidemic
@4:00 Dr. Amy Myers, M.D., speaks on the newly-recognized warning signs of gluten sensitivity: headaches, migraines, inflammation causing brain fog, depression from nutrient deficiencies (zinc, iron, B vitamins, omega-3 fatty acids, vitamin D), joint pain & arthritis, and skin rashes.
Even whole wheat is not the wonderful food for everyone – for some it raises blood sugar (a.k.a. glucose) causing the insulin level to spike. For any of several other reasons, your pancreas might produce excess insulin, too. I think a "fasting blood insulin test" is also a good idea (This insulin test is NOT the same as a glucose test.).
Your family doctor can order these tests.
All the best to you – please let us know how it goes.