Does white matter on MRI indicate possible MS?

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Does white matter on MRI indicate possible MS?

Postby meanbee » Thu May 08, 2014 12:12 pm

I was diagnosed with Central Sleep Apnea last fall. I was told that central apneas usually appear in individuals that have had a stroke or heart failure. I have not been diagnosed with either and still wonder if the sleep specialists made a mistake with my diagnosis. I saw a neurologist asking to look further into possibility of something going on in my brain. He agreed to an MRI. The results were "Non-specific white matter" found. The nurse that gave me the results said that the Dr thought that maybe it was from sustained high blood pressure or something hereditary and that I should make sure and take an aspirin a day.

I recently saw my cardiologist (I have some trouble with A-Fib sometimes and might possibly have Microvascular Disease and or Prinzmetal Angina) I get horrible chest pain often but the doctors haven't been able to find a cause as of yet so that is why they are thinking one of those diagnoses. I mentioned to the cardiologist that the neuro thought that I must have had high blood pressure because of the white matter found. He said that it would have to have been sustained high blood pressure for a long period of time and that since I was never diagnosed with high blood pressure (ever!) that does not make sense. He read the neuro report and said that it mentioned it could also indicate an auto-immune disease or MS.
I was upset that the neuro wouldn't pursue this anymore with me when there is a possible indication of either of those.

When I initially saw the neurologist I did not mention some of the symptoms that I have been experiencing that could be related to MS. I have been getting these "hot spots" all over my body for the past year or so. I did mention to him that my eyesight rapidly declined in the past year or two. He asked if I get headaches which I replied "no". He watched me walk and did a few reflex tests and that was about it. Now, it seems like I have been falling more lately. I also have days that I seem to have major "brain fog". My memory on some days seems worse than others. In the past few weeks I have been experience horrible tingling, numbness and pins and needle sensations all over my body. It is driving me crazy. I called the neuros office to tell them about it and asked if I should be seen. She said that the doctor said that he doesn't know what could be causing it but if it continues, then I should follow up with my GP or I could make an appointment with him.
My question is, does "non-specific white matter" on the MRI combined with some of my symptoms have any indication of possible MS? If there is anybody that can give me any advise, I would greatly appreciate it!

Thanks!
Jennifer
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Re: Does white matter on MRI indicate possible MS?

Postby lyndacarol » Thu May 08, 2014 3:24 pm

meanbee wrote:I was diagnosed with Central Sleep Apnea last fall. I was told that central apneas usually appear in individuals that have had a stroke or heart failure. I have not been diagnosed with either and still wonder if the sleep specialists made a mistake with my diagnosis. I saw a neurologist asking to look further into possibility of something going on in my brain. He agreed to an MRI. The results were "Non-specific white matter" found. The nurse that gave me the results said that the Dr thought that maybe it was from sustained high blood pressure or something hereditary and that I should make sure and take an aspirin a day.

I recently saw my cardiologist (I have some trouble with A-Fib sometimes and might possibly have Microvascular Disease and or Prinzmetal Angina) I get horrible chest pain often but the doctors haven't been able to find a cause as of yet so that is why they are thinking one of those diagnoses. I mentioned to the cardiologist that the neuro thought that I must have had high blood pressure because of the white matter found. He said that it would have to have been sustained high blood pressure for a long period of time and that since I was never diagnosed with high blood pressure (ever!) that does not make sense. He read the neuro report and said that it mentioned it could also indicate an auto-immune disease or MS.
I was upset that the neuro wouldn't pursue this anymore with me when there is a possible indication of either of those.

When I initially saw the neurologist I did not mention some of the symptoms that I have been experiencing that could be related to MS. I have been getting these "hot spots" all over my body for the past year or so. I did mention to him that my eyesight rapidly declined in the past year or two. He asked if I get headaches which I replied "no". He watched me walk and did a few reflex tests and that was about it. Now, it seems like I have been falling more lately. I also have days that I seem to have major "brain fog". My memory on some days seems worse than others. In the past few weeks I have been experience horrible tingling, numbness and pins and needle sensations all over my body. It is driving me crazy. I called the neuros office to tell them about it and asked if I should be seen. She said that the doctor said that he doesn't know what could be causing it but if it continues, then I should follow up with my GP or I could make an appointment with him.
My question is, does "non-specific white matter" on the MRI combined with some of my symptoms have any indication of possible MS? If there is anybody that can give me any advise, I would greatly appreciate it!

Thanks!
Jennifer


Welcome to ThisIsMS, Jennifer (meanbee). I do not have the answer to your "white matter" question, there are others here with information specific to that. I offer you my advice as you invited in your last sentence.
The neurologist's nurse said, "make sure and take an aspirin a day." REALLY? I think it's time to start over with your GP and a different neurologist!

You may not have MS; many other conditions have similar symptoms that need to be ruled out first. Somewhere along the line I hope a doctor (I doubt that neuro that you saw did!) has ordered all the following blood tests suggested by the University of Chicago (tingling/numbness/pins and needles sensations in the extremities are the definition of peripheral neuropathy) : http://peripheralneuropathycenter.uchic ... ndex.shtml

Blood tests

Blood tests are commonly employed to check for vitamin deficiencies, toxic elements and evidence of an abnormal immune response.

Depending on your individual situation, your doctor may request certain laboratory tests to identify potentially treatable causes for neuropathy. These include tests for:
Vitamin B12 and folate levels
Thyroid, liver and kidney functions
Vasculitis evaluation
Oral glucose tolerance test
Antibodies to nerve components (e.g., anti-MAG antibody)
Antibodies related to celiac disease
Lyme disease
HIV/AIDS
Hepatitis C and B


Be sure to ask for copies of all test results and keep your own file of them at home. (Don't settle for a nurse telling you everything is "fine.")

The serum B12 test alone is not adequate to rule out a possible vitamin B12 deficiency; three additional tests are done to rule this out (serum B12 test, serum folic acid test, serum homocysteine test, urinary methylmalonic acid test). A B12 deficiency can cause many symptoms like yours. And even if there is no deficiency in the blood, there can be a functional B12 deficiency in the tissues, which is easily diagnosed with a therapeutic trial of B12 injections for a short while.

http://www.youtube.com/watch?v=BvEizypoyO0

I highly recommend this 50-minute documentary, featuring Sally Pacholok, RN, BSN & her husband Jeffrey Stuart, D.O. (authors of the book, Could It Be B12? An Epidemic of Misdiagnoses); Lawrence Solomon, M.D., hematologist with Yale Medical School; Ralph Green, M.D., hematologist at UC Davis; and Donald Jacobsen, PhD, at the Cleveland Clinic (Homocysteine Research Lab).

Signs and Symptoms of B12 Deficiency:
Tingling/Numbness
Sore Mouth or Tongue
Fatigue
Anxiety
Irritability
Depression
Weakness
Abnormal Gait (falling?)
Mental Impairment ("brain fog")
Visual Disturbances
Migraine
Orthostatic Intolerance
Chest Pain
Tachycardia
Difficulty Breathing
Edema
Elevated Homocysteine
Elevated MMA
Stomach and G.I. Problems
Blood Abnormalities
Neurological Lesions
Limb Movement Disorders
Psychosis
Thoughts of Suicide


Testing for a gluten intolerance (or even celiac disease) is also important because gluten (found in wheat, rye, or barley) can damage the intestines in some people and interfere with the absorption of nutrients in the food.
Dr. Amy Myers, M.D., spoke on gluten sensitivity on The Dr. Oz Show:
http://www.doctoroz.com/episode/gluten- ... t-epidemic

@4:00 Dr. Amy Myers, M.D., speaks on the newly-recognized warning signs of gluten sensitivity: headaches, migraines, inflammation causing brain fog, depression from nutrient deficiencies (zinc, iron, B vitamins, omega-3 fatty acids, vitamin D), joint pain & arthritis, and skin rashes.

Even whole wheat is not the wonderful food for everyone – for some it raises blood sugar (a.k.a. glucose) causing the insulin level to spike. For any of several other reasons, your pancreas might produce excess insulin, too. I think a "fasting blood insulin test" is also a good idea (This insulin test is NOT the same as a glucose test.).

Your family doctor can order these tests. In my opinion, there is a great deal of investigation to be done before a diagnosis can be made.

All the best to you; let us know how it goes.
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Re: Does white matter on MRI indicate possible MS?

Postby euphoniaa » Thu May 08, 2014 4:08 pm

meanbee wrote: The results were "Non-specific white matter" found. The nurse that gave me the results said that the Dr thought that maybe it was from sustained high blood pressure or something hereditary and that I should make sure and take an aspirin a day.

I mentioned to the cardiologist that the neuro thought that I must have had high blood pressure because of the white matter found. He said that it would have to have been sustained high blood pressure for a long period of time and that since I was never diagnosed with high blood pressure (ever!) that does not make sense. He read the neuro report and said that it mentioned it could also indicate an auto-immune disease or MS.

My question is, does "non-specific white matter" on the MRI combined with some of my symptoms have any indication of possible MS? If there is anybody that can give me any advise, I would greatly appreciate it!

Thanks!
Jennifer


Hi Jennifer,

Since most neurological diseases share the same sort of symptoms, and each of us with MS seem to have a completely unique variety of them, you will need your doctors to narrow it down for you. And often, even with an MS diagnosis, your most irritating symptoms could be from something else entirely (like mine).

To answer your specific question, though, the term "white matter" only refers to the general makeup of the brain itself. There has to be more information on your MRI reports like, "non-specific LESIONS" in the white matter of your brain. Or "signal intensity" or some sort of abnormality in the white matter that points to "ischemic changes" from high blood pressure. Or many other issues, such as tumors.

My first report said something like "signal intensity in the white matter suggestive of a demyelinating disease like multiple sclerosis." Those were lesions in the white matter of my brain -- in just the right spots. However, due to my high blood pressure, my neuros insisted on following up with all the other tests (spinal tap, evoked potentials) to confirm that those lesions were only from MS rather than lesions due to my long-term HBP. But it looks like that is not a problem with you.

I'm always able to get a copy of the actual, detailed report from the place that does my MRIs, or at least from the doctor who ordered them, so you should try to do that and maybe it will clarify it for you. "Non-specific" lesions in the white matter would just mean they're not in the usual places that you find MS like next to the ventricles or "periventricular."

I hate to tell you, but it may be a long process to both rule out and rule in medical conditions. Good luck to you!
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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Re: Does white matter on MRI indicate possible MS?

Postby meanbee » Fri May 09, 2014 4:23 pm

lyndacarol and euphoniaa Thank so much for taking the time out to write back to me! You both provided such extremely helpful information and knowledge! lyndacarol, I had no idea about all of that information pertaining to B12 deficiency and about Gluten! euphoniaa, you are so right about getting copies of all of my tests! I need to do that. I tried asking specifics to the nurse but couldn't get anywhere with them.
These sensations are driving me crazy! It is non-stop right now. I keep getting pinching, stinging, spots of skin that feel wet or hot, pricking, burning in random places all over my body. I ended up seeing a P.A. today at my GP's office since my regular doctor wasn't in. She agreed that I should probably see a neurologist and that I shouldn't see that one that I saw before that spaced me off. Unfortunately, it looks like it will take a long time before they can get me in to see them. In the meantime, she had some blood drawn. They are doing a blood panel that will look for the b12 and other general stuff. I am so mad at myself that I didn't consult this board before I went. I had no idea that I should have requested the detailed tests listed above! I also should have requested a b12 shot just to see if that did anything for me. I will definitely have to watch that documentary. I had no idea that it was such an epidemic! The P.A. did mention that she was also doing some sort of rheumatological workup. Testing for inflammation, I think? i should check into the fasting blood insulin test. I have been tested in the past and it checked out but it has been a few years.

euponiaa is right, every one is different in regards to symptoms, etc. I'm just curious if anybody has experienced a sudden onset of symptoms as myself. I have been getting the hot feeling on my skin/muscles for a while not but this other stuff started more recently. This last tuesday is when all of this extreme non-stop pinching/stinging/burning, etc. stuff started. I was under the impression that symptoms usually show up gradually and was hoping that this sudden onset would lean more towards a different diagnosis. In regards to the b12 though, one would think that would be a gradual onset as well?
I know that figuring this out will probably be a long process. I am just so scared right now. I have little ones that rely on me and I wish that I knew everything was going to be OK.

Thanks once again for the responses. You probably don't realize how much it means to me that you guys took time out to respond. It really did help me! I will keep you posted.
Jennifer
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Re: Does white matter on MRI indicate possible MS?

Postby lyndacarol » Fri May 09, 2014 7:21 pm

meanbee wrote:These sensations are driving me crazy! It is non-stop right now. I keep getting pinching, stinging, spots of skin that feel wet or hot, pricking, burning in random places all over my body. I ended up seeing a P.A. today at my GP's office since my regular doctor wasn't in. She agreed that I should probably see a neurologist and that I shouldn't see that one that I saw before that spaced me off. Unfortunately, it looks like it will take a long time before they can get me in to see them. In the meantime, she had some blood drawn. They are doing a blood panel that will look for the b12 and other general stuff. I am so mad at myself that I didn't consult this board before I went. I had no idea that I should have requested the detailed tests listed above! I also should have requested a b12 shot just to see if that did anything for me. I will definitely have to watch that documentary. I had no idea that it was such an epidemic! The P.A. did mention that she was also doing some sort of rheumatological workup. Testing for inflammation, I think? i should check into the fasting blood insulin test. I have been tested in the past and it checked out but it has been a few years.

euponiaa is right, every one is different in regards to symptoms, etc. I'm just curious if anybody has experienced a sudden onset of symptoms as myself. I have been getting the hot feeling on my skin/muscles for a while not but this other stuff started more recently. This last tuesday is when all of this extreme non-stop pinching/stinging/burning, etc. stuff started. I was under the impression that symptoms usually show up gradually and was hoping that this sudden onset would lean more towards a different diagnosis. In regards to the b12 though, one would think that would be a gradual onset as well?
I know that figuring this out will probably be a long process. I am just so scared right now. I have little ones that rely on me and I wish that I knew everything was going to be OK.

It may not be all bad if it takes a long time to get an appointment with a new neurologist – if you see a neuro, he will only see the problem/solution in neurology and maybe the root of your problem lies in another area. I have read: "doctors are experts in, and only test for, those parts of the body in which they specialize."

In the meantime, your GP can order some of the tests above and begin your investigation. The P.A. may have ordered a CRP test (for inflammation levels) and probably a SED rate.

You said that you have had a fasting blood insulin test done a few years ago. The pancreas can increase its insulin production at any time for any of several reasons. You also mention that you have little ones – insulin production is increased during pregnancy.

Each of us here at TIMS has his/her own unique ideas about MS. Mine revolve around insulin, as well as B12 deficiency these days. (As I share my ideas, remember that I have no medical background.) The following sentence, however, is scientific fact: Pregnancy is one of two times in life (Puberty is the other time.) when a woman is in an insulin resistant state (her body is producing increased insulin in order to gain and put weight on the fetus). I suspect that the mother's body often does not revert to normal secretion immediately after delivery of the baby. It is possible that your pancreas did not return to normal insulin production after your last baby was born. If you request your GP to order a "fasting blood insulin test" (which is NOT the same as a glucose/blood sugar test), this problem can be ruled out if your insulin level is in the optimal 3 UU/ML or lower range.

euphoniaa gave you wise advice – each of us has a unique set of symptoms and a unique experience. I think that probably there are as many who have a sudden onset of a symptom as there are who have a gradual onset. It is often human nature to find an excuse for a symptom when it appears. As I recall from the video, one case (Dr. Carr – even a pediatrician no less!) did not recognize the gradual accumulation of his B12 deficiency symptoms. I suspect those can be gradual or sudden as well.

We are all searching for answers. Now, you too. One way or another, Jennifer, "everything is going to be OK."
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Re: Does white matter on MRI indicate possible MS?

Postby Wondering » Fri May 09, 2014 8:20 pm

Hi meanbee

I thought the wet feeling was all in my head until i read your post. I am currently undiagnosed and have a scheduled mri this Sunday. Weird sensations are very worrisome. I dont have the hotness you describe but alot of the other things you mention i have experienced in the last couple months. Time will tell and sometimes these things take forever to figure out. I feel for you, as I am in the same "limbo" land.

Feel free to PM me if you want

Hugs
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Re: Does white matter on MRI indicate possible MS?

Postby lyndacarol » Sat May 10, 2014 8:41 am

meanbee wrote:I was diagnosed with Central Sleep Apnea last fall. I was told that central apneas usually appear in individuals that have had a stroke or heart failure. I have not been diagnosed with either and still wonder if the sleep specialists made a mistake with my diagnosis. I saw a neurologist asking to look further into possibility of something going on in my brain. He agreed to an MRI. The results were "Non-specific white matter" found. The nurse that gave me the results said that the Dr thought that maybe it was from sustained high blood pressure or something hereditary and that I should make sure and take an aspirin a day.


In view of the following:

Posted by MSUK on February 17, 2014: general-discussion-f1/topic24272.html?hilit=Sleep apnea

"A new study provides evidence that obstructive sleep apnea (OSA) is highly prevalent in people with multiple sclerosis (MS), and it suggests that OSA may be a contributor to the fatigue that is one of the most common and debilitating symptoms of MS........... Read More - http://www.ms-uk.org/mssymptoms "


Study suggests sleep apnea may contribute to fatigue in multiple sclerosis
(17/02/14)
A new study provides evidence that obstructive sleep apnea (OSA) is highly prevalent in people with multiple sclerosis (MS), and it suggests that OSA may be a contributor to the fatigue that is one of the most common and debilitating symptoms of MS.

Results show that one-fifth of MS patients surveyed in a large tertiary MS practice carried a diagnosis of OSA, and more than half were found to have an elevated risk for OSA based on a validated screening tool. Further analysis showed that OSA risk was a significant predictor of fatigue severity, even after adjusting for potential confounders such as age, gender, body mass index (BMI), sleep duration and depression.

"OSA may be a highly prevalent and yet under-recognized contributor to fatigue in persons with MS," said lead author and principal investigator Tiffany J. Braley, MD, MS, an Assistant Professor of Neurology from the University of Michigan Multiple Sclerosis and Sleep Disorders Centers in Ann Arbor, Mich. "Our study suggests that clinicians should have a low threshold to evaluate MS patients for underlying sleep disturbances."

The study results appear in the Feb. 15 issue of the Journal of Clinical Sleep Medicine, which is published by the American Academy of Sleep Medicine.

"Obstructive sleep apnea is a chronic illness that can have a destructive impact on your health and quality of life," said American Academy of Sleep Medicine President Dr. M. Safwan Badr. "People with multiple sclerosis who are found to have a high risk of OSA should be referred to a board certified sleep medicine physician for a comprehensive sleep evaluation."

Braley and her colleagues, Benjamin M. Segal, MD (Director of the University of Michigan Multiple Sclerosis Center), and Ronald D. Chervin, MD, MS, (Director of the University of Michigan Sleep Disorders Center) studied 195 MS patients who completed a sleep questionnaire and four validated instruments designed to assess daytime sleepiness, fatigue severity, insomnia severity and OSA risk. Medical records also were accessed to examine clinical characteristics that may predict fatigue or OSA risk.

According to the authors, the cross-sectional design of the study did not allow for an examination of cause-and-effect relationships. However, the results suggest that a substantial portion of MS-related fatigue could be eliminated by the diagnosis and successful treatment of OSA in patients with MS.

The National Multiple Sclerosis Society (NMSS) estimates that approximately 400,000 people in the U.S. have MS, making it the most common disabling neurological disease of young adults.

The AASM reports that OSA is a common sleep disorder that affects up to seven percent of men and five percent of women. It involves repetitive episodes of complete or partial upper airway obstruction occurring during sleep despite an ongoing effort to breathe. The most effective treatment option for OSA is Continuous Positive Airway Pressure (CPAP) therapy, which helps to keep the airway open by providing a stream of air through a mask that is worn during sleep.

Source: Science Codex (17/02/14)


Posted by blueberry on March 25, 2014, as one of her symptoms listed sleep apnea: post223150.html?hilit=Sleep apnea#p223150

I suggest that the sleep specialists and your initial neurologist should update their medical reading.
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Re: Does white matter on MRI indicate possible MS?

Postby meanbee » Sat May 10, 2014 9:44 am

lyndacarol, Thanks for the great links. They were very interesting reads. It does seem like there is some fatigue crossover. I suffer from a lot of fatigue although my sleep apnea is somewhat controlled. I was not able to use the cpap. I ended up with an oral device that I'm able to tolerate much better but I'm still not at 100%. I am not what one would think of as a typical sleep apnea patient (I'm female, I'm not overweight I also have a slender neck) so many doctors didn't even think of me possibly having it. I had to pursue things on my own until they finally agreed to get me tested! I have been very frustrated with doctors over the years. That's why I think that it's important to do your own research and find others (like you guys!) that have first-hand experience and such valuable advise!
I will mention the blood fasting insulin test to the doctors. It would be good to know. I guess my little ones probably aren't so little (My youngest is 5) but they still need my attention most of the time so they still seem little. In one of my pregnancies I was borderline gestational diabetes and had to keep getting tested but the other pregnancies after checked out OK. I do have a brother that had adult-onset juvenile diabetes diagnosed in his early 30's. That was one reason why I went to get tested but like I said it has been awhile. I will check into another test.
You have some great suggestions and advise. I really appreciate you saying "One way or another, Jennifer, everything is going to be OK." Sometimes, a person just needs to hear that. I might have been getting too far ahead of myself. I need to take a deep breath and step back for a second. My best friend lost her mother to M.S. in the 1990's. She had a very aggressive form and that was a time before there was much help. It was terrible to watch her die without anything to slow the progression. My mind keeps going back to those days of watching her and her kids suffer. My personality doesn't usually allow me to stay positive and optimistic but sometimes, like I said just hearing "everything is going to be OK" means a lot!
Thanks Again!
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Re: Does white matter on MRI indicate possible MS?

Postby meanbee » Sat May 10, 2014 9:50 am

Cathy (Wondering),
Thanks for writing. Please do keep us posted on your results! Does your neurologist indicate that there could be something else that he is suspecting or is he just trying to figure out if it is MS? Did you have any other tests done?
Yes, that feeling that my skin is wet is so odd! When it first started, I had to take my shoe off because I thought that I stepped in water. Then I started getting in different places on my body. Right now, it feels as though I have a sun burn on my back even though I most definitely don't. I have gotten pin-prick sensations along with crawling and stinging before but nothing like this!
Feel free to message me as well! Good luck on your test!
Hugs to you too!
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Re: Does white matter on MRI indicate possible MS?

Postby lyndacarol » Sat May 10, 2014 12:40 pm

As a regular viewer of The Dr. Oz Show (I DVR it and watch it later so that I can zip through the commercials.), I found the episode on Thursday (5/8/2014) entitled Gluten under Fire, featuring Dr. David Perlmutter, author of the book Grain Brain, to be very interesting – especially the comparison of the MRIs from a normal brain and a gluten sensitive brain.

http://www.doctoroz.com/episode/diane-k ... 7191046001

Did you get a CD copy of your MRI, Jennifer? Gluten sensitivity is not necessarily accompanied by gastrointestinal problems – there is an "atypical" form.

The following Texas lab has an accurate and noninvasive way to test for it:
https://www.enterolab.com/StaticPages/Faq.aspx
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Re: Does white matter on MRI indicate possible MS?

Postby Wondering » Sat May 10, 2014 12:52 pm

Meanbee

I have also had the wet feeling on my feet but mostly on the underside of my forearms, comes and goes. Just this morning I noticed while laying in bed a pin prick feeling just on my little toe. Funny how before all this waiting and wondering started, i probably wouldnt have even noticed it.

My neuro did nerve conduct tests in her office and all appeared normal. She didn't really say what she was " looking" for in terms of the MRI, but i guess that is the next step in determining MS or not.

I was careful not to say too much to her during my initial visit. I had written down a list of my symptoms over the past couple months and just basically filled her in. She gave me the talk about getting older and all that but didnt mention the nasty "MS" word. So I wait and see.

MRI tmrw morning.

Hugs Cathy
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Re: Does white matter on MRI indicate possible MS?

Postby meanbee » Sun May 11, 2014 7:19 pm

lyndacarol,
thanks for the info! That Dr. Oz segment was very interesting. I had no idea about gluten's potentially damaging ways. I can't believe the difference in the MRI as well! My Grandmother died from complications with Alzheimers/Dementia. I wonder if knowing this information would have helped her. I will check the link on that test as well. I have really horrible insurance and a very strict budget and lots of medical debt so I was trying to avoid going to the doctor before all of this came up but don't really have a choice now. Symptoms seem to actually be worse today. I hope that whatever it is that's going on is not causing more damage by me not treating it.
Also, I do not have a CD copy of my MRI nor the results. I realize that it would be a good idea if I get a copy of it. Hopefully, they won't give me any trouble in trying to do so.
Thank you so, so much!
Jennifer
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Re: Does white matter on MRI indicate possible MS?

Postby meanbee » Sun May 11, 2014 7:23 pm

Cathy (Wondering)
I hope that your MRI went well today and that you get the results soon. I am crossing my fingers that you get some great news! Please, let us know!
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Re: Does white matter on MRI indicate possible MS?

Postby Wondering » Sun May 11, 2014 8:13 pm

Hi Jennifer....sorry your feeling worse today :(. My MRI went pretty good. It was my first one so i wqs a little nervous at first but just kept my eyes closed and went to a happy place. It was over before I knew it. My follow up with neuro is May 21, and im not sure what to expect then.

Im feelng a bit more dizziness today but that could be from the Ativan and Gravol i took before the test :). Glad that step is overwith. Im looking forward to a good night sleep tonight.

Hugs to all
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Re: Does white matter on MRI indicate possible MS?

Postby meanbee » Wed May 14, 2014 11:08 am

I found out that the new neurologist that I wanted to see will take almost a half of a year to get in to. Since, it seemed like some of my symptoms were getting worse, I called the nurse for the neurologist that gave me the MRI and told them that I would like to be checked out asap. I started to get some pain in my spine and some weird things with my eyes and my neck was getting stiff.

Well, I saw that neurologist today and he checked me over and all of the blood work results. i guess that all of the blood work looked OK except I am low on iron. He also checked my reflexes and watched me walk. I guess that checked out as well. He told me "You are not going to like what I have to say but, I can't say that you have M.S. or say that you don't!" He also stated that he could some spinal tap testing but doesn't want to do that at this time nor an MRI on my spine because insurance might not pay for it yet.

In regards to the non-specific white matter found on my MRI, he said that he can't say what it is from for sure. He wants to do a follow up MRI in 6 to 12 months. (The last one was done in Dec. so I should have asked if it was from then or from today). He said that maybe those spots are from getting Migraines but he can't say definitively that they are not from M.S. I have never suffered from what I would think are Migraines and usually never get headaches unless I am exposed to a lot of strong scents and then they usually go away after I get fresh air. I don't get the classic horrible headaches that everyone else that I know with migraines get but maybe I do get Migraines and don't know it? The day that these new symptoms started getting really bad (May 6th) I was in an enclosed area working with essential oils and got a headache and fogginess. Once that went away, this parathesis/neuropathy type of sensations started and have not gone away. I asked if he thought that I had some chemical sensitivity reaction or a neurotoxic reaction and he said no. He couldn't give any other reason why I am still suffering these symptoms and said that he can't rule out M.S. but can't diagnose it yet either. In the meantime, he said not to expose myself to anything that is scented (which I haven't really since that day but the symptoms persist) and to see him in three months.

He did prescribe Gabapentin for the nerve pain. I guess that I will try it and see what happens.

The G.P.'s office called in some iron for my anemia. I asked if they can do some additional tests to make sure that my b12 really is OK and asked about a fasting glucose test. She said that she will talk to the doc to see if they will and get back to me.

Ugh.

I knew that there was going to be a waiting-game but I had that tiny glimmer of hope that he would say that I was just a little low on something and go about my day.

Thanks for listening,
Jennifer
meanbee
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Joined: Thu May 08, 2014 11:23 am

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