RuralLaundry wrote:Has anyone tried taking Turmeric, B Complex and Fish oil prior to diagnosis to try and stave off recurrences?
Any other natural items that have helped? I'm not big on medication and from most of what I'm reading it's very difficult to tell who or how much people will be helped by the current MS drugs available. Maybe I'm reading the wrong stuff but it seems silly to spend the money/time/side effects on treatments that may or may not do much good in the disease progression.
NHE wrote:I wish you the best with your decision. People are now diagnosed earlier and earlier in the disease process. I experienced 8 years of clinical remission without doing anything different. If you read enough personal experiences, I think that you'll find that an 8 year remission is not unusual. I have read of people having even longer periods of remission, up to 15 to 20 years. Had I been diagnosed and put on one of the DMDs, it would have been reasonable to attribute the 8 year remission to the medication. However, I suspect that if I had started the dietary changes and supplements back in 1991, then the remission would have been even longer.
I currently feel a bit jaded by the DMDs and no longer feel that chronic immune suppression is a valid treatment paradigm (sure, corticosteroids such as prednisone can shorten an attack by inducing apoptosis in white blood cells, but long term use doesn't seem to have much impact on progression). My current hypothesis is that MS may be a neurodegenerative disease with a component of chronic immune activation in susceptible individuals as opposed to one of autoimmune etiology. After having read much of the evidence surrounding the CCSVI hypothesis, I suspect that it will pan out to play a large role in the disease process. Researchers have repeatedly published over the last 20 to 30 years that MS patients have reduced cerebral blood perfusion. However, it seems that few have asked why this might be the case until recently.
ElliotB wrote:DMDs do not necessarily modify the disease progression, rather they help possibly help reduce the frequency and intensity of relapses.
I take the supplements you list plus many others. I strongly recommend Royal Jelly.
"it seems silly to spend the money/time/side effects on treatments that may or may not do much good in the disease progression"
Even 1 less relapse is a good thing.
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