I am so glad I found this site. For years I have felt "crazy" because no one can figure out why I'm experiencing the symptoms I am. It looks like I'm definitely not alone, unfortunately.
At the end of high school (about 9-10 years ago) I started having debilitating migraines and had MRI and other scans done. In college I started getting the numbness/ tingling along with them. In my sophomore year I started having "spells" that went along with all the other symptoms. Sometimes I just tremor, other times it appears as though I'm having a grand mal seizure. I have had all kinds of testing done and everything comes back inconclusive or "normal". About three years ago I started getting severe nerve pain with all of the other symptoms. It often feels as though anything that touches my face or other areas of my skin are knives in my skin. These symptoms are not constant, however. I have learned my triggers, such as sitting in hard chairs, too much computer / tv time, flashing lights, etc. If I hurt my back - if something bumps into my spine or I fall and jolt my back I have spells for days. I get a sensation I can't describe in my back (since having my daughter it's now in my hips, too) before having a spell. Eventually, the spells and nerve pain subside and I go back to living normal life for a little while again.
The doctors (4 neurologists and many family and doctors at the hospital) cannot figure out what's causing these symptoms. All they say is they've never met anyone like me before. (Shouldn't that be a compliment?! My daughter is 1 1/2 years old now, and it's getting very difficult to see her so effected by my spells. I need to find an answer. I have seen some similarities in my symptoms and MS, but the neurologist says I don't have lesions on my brain so it cannot be MS. I read that there could be lesions on my spine causing these. Has anyone heard of that or something like what I'm experiencing?
Thanks in advance for any ideas!
Blood tests are commonly employed to check for vitamin deficiencies, toxic elements and evidence of an abnormal immune response.
Depending on your individual situation, your doctor may request certain laboratory tests to identify potentially treatable causes for neuropathy. These include tests for:
Vitamin B12 and folate levels
Thyroid, liver and kidney functions
Oral glucose tolerance test
Antibodies to nerve components (e.g., anti-MAG antibody)
Antibodies related to celiac disease
Hepatitis C and B
bumblebee0513 wrote: I have seen some similarities in my symptoms and MS, but the neurologist says I don't have lesions on my brain so it cannot be MS.
I read that there could be lesions on my spine causing these. Has anyone heard of that or something like what I'm experiencing?
lucediamore wrote:Hi there,
It started with a lesion on optic nerve, followed by horrific migraines, numbness on the right side of my face, forgetfulness and issues with speech and pain in my neck.
My CP did show bands but it was also in my blood, all MRIs of the brain and spine are clear, just more lesion on both optic nerves.
The neuro that I am seeing will not diagnose me with MS because of the clear MRI and made it sound like it was absurd to have no lesions,
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