Still undiagnosed after 2 years of symptoms.

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.

Still undiagnosed after 2 years of symptoms.

Postby hyien » Fri Feb 17, 2017 4:46 am

Hi everyone,

I have described my symptoms a few weeks back in the following thread:
introductions-f20/topic28544.html

I'm still experiencing all those symptoms right now.
Lately (past 3 weeks), I've been experiencing my both knees and thighs getting really weak and cramped, and seems to be getting worse. :(
I went back to my neuro and he thinks I it is due to sleep apnea based on an early sleep study I had done (score 10.9), although that is a pretty mild score.

Does my neuro make sense to suggest sleep apnea, or should I get checked for other conditions?
Really confused and depressed now.
hyien
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Re: Still undiagnosed after 2 years of symptoms.

Postby Snoopy » Fri Feb 17, 2017 7:41 am

I understand you have had symptoms for 2 years and you're undiagnosed, but my confusion is why you believe you have undiagnosed Multiple Sclerosis. There can be many reasons for a person's symptoms and would not necessarily mean the person has MS. There is a diagnostic criteria for MS --- The Revised McDonald Criteria, if a person doesn't meet the criteria then a diagnosis of MS is usually not given.

Part of the diagnostic criteria requires all other possible causes for a person's symptoms must be ruled out. So if MS doesn't appear to be the cause of your symptoms then it's time to consider other conditions or reasons for symptoms. Just my opinion.
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Re: Still undiagnosed after 2 years of symptoms.

Postby lyndacarol » Fri Feb 17, 2017 8:08 am

hyien wrote:Does my neuro make sense to suggest sleep apnea, or should I get checked for other conditions?
Even in Singapore, a person could be vitamin D deficient. (Such a deficiency can result in the symptoms you describe, even the connection to sleep apnea.) If you have not had the vitamin D blood test called "25-hydroxy D," it would be a good idea to ask your doctor to order it. Also, request your own copy of the test result so that you have the actual number.

http://library.med.utah.edu/kw/ms/mml/ms_worldmap.html


Low vitamin D status despite abundant sun exposure. (2007)
N Binkley, R Novotny et al.
http://www.ncbi.nlm.nih.gov/pubmed/17426097

Conclusions: These data suggest that variable responsiveness to UVB radiation is evident among individuals, causing some to have low vitamin D status despite abundant sun exposure. In addition, because the maximal 25(OH)D concentration produced by natural UV exposure appears to be approximately 60 ng/mL, it seems prudent to use this value as an upper limit in prescribing vitamin D supplementation.


Severe vitamin D deficiency in Hawai'i: a case report. (2006)
M Bornemann
http://www.ncbi.nlm.nih.gov/pubmed/16602611

Severe vitamin D deficiency would appear unlikely to occur in Hawai'i, which has abundant year-round sun exposure. This case report of a woman with no obvious risk factors for vitamin D deficiency who was found to have severe vitamin D deficiency and coexisting primary hyperparathyroidism should alert health care providers to be more aware of vitamin D deficiency in Hawai'i. .
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lyndacarol
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Re: Still undiagnosed after 2 years of symptoms.

Postby hyien » Fri Feb 17, 2017 5:03 pm

Snoopy wrote:I understand you have had symptoms for 2 years and you're undiagnosed, but my confusion is why you believe you have undiagnosed Multiple Sclerosis. There can be many reasons for a person's symptoms and would not necessarily mean the person has MS. There is a diagnostic criteria for MS --- The Revised McDonald Criteria, if a person doesn't meet the criteria then a diagnosis of MS is usually not given.

Part of the diagnostic criteria requires all other possible causes for a person's symptoms must be ruled out. So if MS doesn't appear to be the cause of your symptoms then it's time to consider other conditions or reasons for symptoms. Just my opinion.


I guess I'm being paranoid, but most of my symptoms are similar to what MS patients have, so that lead me to believe MS might be a possible cause.
hyien
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Posts: 7
Joined: Wed Jan 04, 2017 5:42 pm

Re: Still undiagnosed after 2 years of symptoms.

Postby hyien » Fri Feb 17, 2017 5:06 pm

lyndacarol wrote:
hyien wrote:Does my neuro make sense to suggest sleep apnea, or should I get checked for other conditions?
Even in Singapore, a person could be vitamin D deficient. (Such a deficiency can result in the symptoms you describe, even the connection to sleep apnea.) If you have not had the vitamin D blood test called "25-hydroxy D," it would be a good idea to ask your doctor to order it. Also, request your own copy of the test result so that you have the actual number.

http://library.med.utah.edu/kw/ms/mml/ms_worldmap.html


Low vitamin D status despite abundant sun exposure. (2007)
N Binkley, R Novotny et al.
http://www.ncbi.nlm.nih.gov/pubmed/17426097

Conclusions: These data suggest that variable responsiveness to UVB radiation is evident among individuals, causing some to have low vitamin D status despite abundant sun exposure. In addition, because the maximal 25(OH)D concentration produced by natural UV exposure appears to be approximately 60 ng/mL, it seems prudent to use this value as an upper limit in prescribing vitamin D supplementation.


Severe vitamin D deficiency in Hawai'i: a case report. (2006)
M Bornemann
http://www.ncbi.nlm.nih.gov/pubmed/16602611

Severe vitamin D deficiency would appear unlikely to occur in Hawai'i, which has abundant year-round sun exposure. This case report of a woman with no obvious risk factors for vitamin D deficiency who was found to have severe vitamin D deficiency and coexisting primary hyperparathyroidism should alert health care providers to be more aware of vitamin D deficiency in Hawai'i. .


I don't think I've had that specific test done, I'll ask my doc.
Thanks.
hyien
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Posts: 7
Joined: Wed Jan 04, 2017 5:42 pm


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