Struggling with a diagnosis, clear MRI

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.

Struggling with a diagnosis, clear MRI

Postby RedDoginKernow » Wed Jan 17, 2018 11:55 am

Hi folks, my story so far.
I had a sublamdibular gland taken out in March 2015 due to it containing a tumour.
It hadn't spread and seemed a minor op.
I struggled with the recovery and was off for a month. Infection and swelling in the web of my neck.
From that point on I've really suffered with sleep, gone from 5 hours a night to upto 20 hours a day.
Fatigue like I've never known, even after a marathon. Dizzyness, double vision, facial palsy in the same eye.
Loss of sensation in right leg and arm on the same side, pins and needles.
Pains and spasms in right leg
weakness or fatigue.
Bladder issues, loss of labido.
Short term memory is shot, I start a sentence and finish another.
Loss of vocabulary and train of thought.
Local doc sent me to hospital for investigation work.
I've had MRI which came back clear.
Balance clinic, nightmare.
Seen a specialist ENT, had ears tested, eyes tested, booked in for physio next week. Brain scan the week after.
MS is mentioned at most meetings but the clear MRI is fogging the situation.
Sound familiar to anyone?
RedDoginKernow
Newbie
 
Posts: 2
Joined: Tue Jan 16, 2018 9:24 am

Advertisement

Re: Struggling with a diagnosis, clear MRI

Postby jimmylegs » Wed Jan 17, 2018 12:08 pm

what kind of tumour

Surgical complications of submandibular gland excision.
https://www.ncbi.nlm.nih.gov/pubmed/22014641
Submandibular gland excision is the treatment of choice in chronic pathology resistant to medical treatments or in oncological cases. ... Complications were more common after gland excision due to inflammatory causes. ...
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
User avatar
jimmylegs
Volunteer Moderator
 
Posts: 11800
Joined: Sat Mar 11, 2006 3:00 pm

Re: Struggling with a diagnosis, clear MRI

Postby RedDoginKernow » Sat Jan 20, 2018 2:21 pm

Tumour was malignant, but contained within the gland and hadn't attached to the gland wall.
RedDoginKernow
Newbie
 
Posts: 2
Joined: Tue Jan 16, 2018 9:24 am

Re: Struggling with a diagnosis, clear MRI

Postby jimmylegs » Sat Jan 20, 2018 4:52 pm

ok there could very well be some specific 'subclinical' things to take a look at, and some associated action items.
has anyone referred you to any sort of prevention-oriented specialist? a dietitian or??
can you share detailed results from any nutritional labwork you may have on file?
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
User avatar
jimmylegs
Volunteer Moderator
 
Posts: 11800
Joined: Sat Mar 11, 2006 3:00 pm


Return to Undiagnosed

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service