Struggling with a diagnosis, clear MRI

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Struggling with a diagnosis, clear MRI

Postby RedDoginKernow » Wed Jan 17, 2018 12:55 pm

Hi folks, my story so far.
I had a sublamdibular gland taken out in March 2015 due to it containing a tumour.
It hadn't spread and seemed a minor op.
I struggled with the recovery and was off for a month. Infection and swelling in the web of my neck.
From that point on I've really suffered with sleep, gone from 5 hours a night to upto 20 hours a day.
Fatigue like I've never known, even after a marathon. Dizzyness, double vision, facial palsy in the same eye.
Loss of sensation in right leg and arm on the same side, pins and needles.
Pains and spasms in right leg
weakness or fatigue.
Bladder issues, loss of labido.
Short term memory is shot, I start a sentence and finish another.
Loss of vocabulary and train of thought.
Local doc sent me to hospital for investigation work.
I've had MRI which came back clear.
Balance clinic, nightmare.
Seen a specialist ENT, had ears tested, eyes tested, booked in for physio next week. Brain scan the week after.
MS is mentioned at most meetings but the clear MRI is fogging the situation.
Sound familiar to anyone?
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Re: Struggling with a diagnosis, clear MRI

Postby jimmylegs » Wed Jan 17, 2018 1:08 pm

what kind of tumour

Surgical complications of submandibular gland excision.
https://www.ncbi.nlm.nih.gov/pubmed/22014641
Submandibular gland excision is the treatment of choice in chronic pathology resistant to medical treatments or in oncological cases. ... Complications were more common after gland excision due to inflammatory causes. ...
odd sx? no dx? check w/ dietitian
DRI=MINIMUM eg bit.ly/1vgQclQ
99% don't meet these. meds/lifestyle can affect levels
status can be low in ms & other cond'ns
'but my results are normal'. typical panels don't test all
deficits occur in 'normal' range
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Re: Struggling with a diagnosis, clear MRI

Postby RedDoginKernow » Sat Jan 20, 2018 3:21 pm

Tumour was malignant, but contained within the gland and hadn't attached to the gland wall.
RedDoginKernow
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Re: Struggling with a diagnosis, clear MRI

Postby jimmylegs » Sat Jan 20, 2018 5:52 pm

ok there could very well be some specific 'subclinical' things to take a look at, and some associated action items.
has anyone referred you to any sort of prevention-oriented specialist? a dietitian or??
can you share detailed results from any nutritional labwork you may have on file?
odd sx? no dx? check w/ dietitian
DRI=MINIMUM eg bit.ly/1vgQclQ
99% don't meet these. meds/lifestyle can affect levels
status can be low in ms & other cond'ns
'but my results are normal'. typical panels don't test all
deficits occur in 'normal' range
User avatar
jimmylegs
Volunteer Moderator
 
Posts: 11170
Joined: Sat Mar 11, 2006 4:00 pm


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