Neuro symptoms MRI on Tuesday

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.

Neuro symptoms MRI on Tuesday

Postby janinerozon » Sun Jul 15, 2018 6:14 am

I will try to be brief.
The most prominent symptom for me has been EXTREME fatigue. Probably for at least a year. It does come and go though. For a couple of months it will be debilitating. Then it will ease up and I'll feel relatively alright.
Other symptoms: Tripping over virtually nothing, terrible balance and spatial awareness (always bumping into things), constantly dropping things, itchy spells when I'm going through a period of fatigue, not only do I have heat intolerance, I'm always hot, especially my feet. Even in the middle of winter I cannot stand to wear socks. Memory and cognitive problems, changes in vision (no pain, but it feels like I'm not wearing my glasses when I am-recent optometrist visits indicate a very small change in prescription), recent urinary problems - trouble starting to go and urgency.

I don't really have any pins and needles or numbness.

I've had several blood and urine tests. All come back normal. The docs say they've ruled out almost everything else.

I go for a brain/spine MRI on Tuesday night. Obviously I don't want a diagnosis of MS, but at this point, I almost just want a dx so that I can start fixing it, particularily the fatigue. I can't even function when I'm in a bout of fatigue.

I'm nervous that if they don't dx with MS, then what else could it be?


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Re: Neuro symptoms MRI on Tuesday

Postby Zyklon » Sun Jul 15, 2018 6:25 am

Welcome,

Maybe tests for following and share us?

Fatigue: Iron deficiency, high thyroid
Balance: Low magnesium, low B12
Always hot: High thyroid
Memory cognitive: low B12

How old are you? Diet? Physical activity levels?
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Re: Neuro symptoms MRI on Tuesday

Postby janinerozon » Sun Jul 15, 2018 6:50 am

I'm a 38 year old female.

All blood tests normal including: B12, iron, thyroid, hormones, lyme, etc.

I try to at the very least walk or bike ride everyday. Although, when I'm in a bout of fatigue, I can barely make it through a day of work.

My diet is not great, but not horrible either.
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Re: Neuro symptoms MRI on Tuesday

Postby jimmylegs » Sun Jul 15, 2018 7:43 am

hi and welcome janine :)

beware the 'normal' result. that's a bell curve, statistical normal and reflects characteristic levels for a society prone to chronic illness.
it's well known for several essential nutrients that health and disease both occupy the normal range. this is the case for ms patients among others.
further, since local labs often set their own ranges, one person can be normal at one lab and deficient at another.

you can make sure your status is consistent with that enjoyed by healthy individuals and nothing like that of a typical ms patient.
specific results from your files for things like serum ferritin, serum b12 (and you may also have serum vitamin d3) will be a good place to start.

for example, is your serum b12 level well above 370 pmol/L? if not, you might choose to increase your intake of excellent dietary b12 sources to achieve better status. some examples:
http://www.whfoods.com/genpage.php?tnam ... #foodchart

since fatigue is a major issue in your case, it could also be worth a closer at your serum ferritin status. you probably know that serum ferritin is one test for which the result is usually categorized within bands describing the likelihood or not of deficiency. does your level entirely exclude deficiency? if not, here are some excellent healthy dietary sources:
http://www.whfoods.com/genpage.php?tnam ... #foodchart
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
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Re: Neuro symptoms MRI on Tuesday

Postby NHE » Mon Jul 16, 2018 2:12 am

To echo Jimmylegs' comments, knowing your B12 test result is critical. Some laboratory ranges have ridiculously low bottom numbers. Example: a medical system run by a major research university in my area uses a B12 range with a lower cutoff of 180 pg/mL (133 pmol/L). This is negligent bordering on malpractice! Moreover, symptoms must always be taken into account. You could have a B12 test result "within the normal range" say around 220-250 pg/mL and still have B12 deficiency based on your symptoms. Also, depending on your B12 test result, diet may not be sufficient to correct a deficiency. Sublingual methylcobalamin supplements in the range of 1000-5000 µg/tablet/day would likely be required.
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Re: Neuro symptoms MRI on Tuesday

Postby elaine747 » Mon Oct 08, 2018 7:50 am

So, regarding these tests for things like B12 to see if one is deficient and getting the right level for someone with MS, would it be best to go to a specific type of doctor to do these blood tests and then they suggest an increase in a certain vitamin? I don't think there are any MS specialists in my area. Do regular neurologists do blood tests and try to get a patient's vitamin levels in line? I sometimes have gotten the idea that regular neurologists are just interested in handing out the drugs and that's it. Is it something one has to do on their own~getting the blood work and figuring it all out?
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