Confused! Copaxone or LDN?
Posted: Sat Feb 06, 2010 12:03 pm
Hello everyone.
I need to decide between copaxone or Ldn.
I can add one or the other, later on.
I have a neuro appt. soon and I'm going to ask for one or the other before my visit is over. He prescribed LDN for me 2 years ago (I think I only took it "between a WEEK a month?), so he might give me Ldn again. I will bring quality lit. for him just in case he needs a refresher.
I have been waiting for a pill since 1999, when I was dx. At that time, I tried a 9-mo. run of Avonex. Not looking forward to going on an injectible again, or site reactions, but at least it's subcutaneous and it might help to know that a pill is coming. If I do start copax, it'll be an every other day thing. I'm 5'6", 100lbs so I'm temped to make it every 3 days.
I'm starting to progress quite a bit within the last year or so...and this about as far as I "want" to progress...I'm only in a wheelchair on outings. Maybe it's a flare, maybe I should ask for a round of steroids before anything else to find out. I'm afraid that the Ldn won't have any effect and in the meantime, I will progress even further. Copaxone seems to be the "safe" route. I don't have time to play around and experiment any more.
On one hand, copax has trials behind it, on the other it seems Ldn is being investigated for many neuro dis-eases. Shabby reasoning there.
But what if copax doesn't stop it either? Maybe I should wait and see about the walking pill. These are the excuses I come up with so I don't have to deal with the fact that I'm actually going to ASK for an injectible.
The decision as to what to ask or notask for will continue to be up in the air until I'm actually there in the office, talking to the neuro.
Thoughts?
Thank you.
I need to decide between copaxone or Ldn.
I can add one or the other, later on.
I have a neuro appt. soon and I'm going to ask for one or the other before my visit is over. He prescribed LDN for me 2 years ago (I think I only took it "between a WEEK a month?), so he might give me Ldn again. I will bring quality lit. for him just in case he needs a refresher.
I have been waiting for a pill since 1999, when I was dx. At that time, I tried a 9-mo. run of Avonex. Not looking forward to going on an injectible again, or site reactions, but at least it's subcutaneous and it might help to know that a pill is coming. If I do start copax, it'll be an every other day thing. I'm 5'6", 100lbs so I'm temped to make it every 3 days.
I'm starting to progress quite a bit within the last year or so...and this about as far as I "want" to progress...I'm only in a wheelchair on outings. Maybe it's a flare, maybe I should ask for a round of steroids before anything else to find out. I'm afraid that the Ldn won't have any effect and in the meantime, I will progress even further. Copaxone seems to be the "safe" route. I don't have time to play around and experiment any more.
On one hand, copax has trials behind it, on the other it seems Ldn is being investigated for many neuro dis-eases. Shabby reasoning there.
But what if copax doesn't stop it either? Maybe I should wait and see about the walking pill. These are the excuses I come up with so I don't have to deal with the fact that I'm actually going to ASK for an injectible.
The decision as to what to ask or notask for will continue to be up in the air until I'm actually there in the office, talking to the neuro.
Thoughts?
Thank you.