Cellcept for MS?
Posted: Mon Feb 22, 2010 11:46 am
I searched the forums and the threads I found were either a couple years old or talking about using it in conjunction with CRABs.
Since I am an odd little duck
and my body will not tolerate the CRABs or Tysabri, my neuro suggested Cellcept as an alternative to keep me on some sort of treatment until the orals are approved and I can try them. She did say that it's an experimental treatment, based on anecdotal evidence and not scientific studies.
**Off topic** Obviously it's based on the idea that MS is an autoimmune disease and not vascular, which they firmly believe at this point. (I did find out that my overseeing neuro, Dr. Corboy, is on the committee to peer review the BNAC study on CCSVI, which should be interesting. He's been quite skeptical in the conversations we've had with him about it, but he's also said that he respect's the researcher and has worked with him before so he knows that the research is done properly and scientifically.) **End OT**
Anywhoo, she did say that I should research it and decide whether to go that route or wait and see what comes down the pike.
Anyone have information about Cellcept as it pertains to MS? I know there is a risk of PML. And information on the rates of infection? Any information, even loose, about how well it treats MS?
Since I am an odd little duck
and my body will not tolerate the CRABs or Tysabri, my neuro suggested Cellcept as an alternative to keep me on some sort of treatment until the orals are approved and I can try them. She did say that it's an experimental treatment, based on anecdotal evidence and not scientific studies. **Off topic** Obviously it's based on the idea that MS is an autoimmune disease and not vascular, which they firmly believe at this point. (I did find out that my overseeing neuro, Dr. Corboy, is on the committee to peer review the BNAC study on CCSVI, which should be interesting. He's been quite skeptical in the conversations we've had with him about it, but he's also said that he respect's the researcher and has worked with him before so he knows that the research is done properly and scientifically.) **End OT**
Anywhoo, she did say that I should research it and decide whether to go that route or wait and see what comes down the pike.
Anyone have information about Cellcept as it pertains to MS? I know there is a risk of PML. And information on the rates of infection? Any information, even loose, about how well it treats MS?
