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I nearly missed it ...
Posted: Tue Apr 12, 2005 12:17 am
by JFH
MS Week: 10th - 17th April 2005
Yes this week is MS Week in the UK. I'm not housebound, I do watch the TV, listen to the radio, read newspapers and the net but I've seen doodley-squat of this anywhere except on the UK MS Soc website.
http://www.mssociety.org.uk/get_involve ... index.html
I gave a pluadit today to the MS Soc
(http://www.thisisms.com/modules.php?nam ... pic&t=1091) but the MS Week initiative seems to me to be pathetic. Anyone else from the UK noticed it?
Posted: Wed Apr 13, 2005 9:52 am
by liane
I didn't know that either.
I'm in the uk too and have seen nothing at all.
Posted: Wed Apr 13, 2005 10:06 am
by SarahLonglands
Nope, and I don't exactly walk round with my eyes closed!
Sarah
Posted: Wed Apr 13, 2005 11:53 am
by Scaggs
Posted: Thu Apr 14, 2005 2:40 am
by SarahLonglands
Well, I didn't find this exactly illuminating and it was pretty much what they used last year. The photograph didn't look like a typical person with MS either.
Sarah
MS Society is seeking Trustees
Posted: Thu Apr 14, 2005 10:29 am
by gibbledygook
The MS Society is currently seeking Trustees. I intend to apply and stick my oar in. I have already done a little work with people at the society and my first impression although very minor was that it is a large bureaucracy without a good sense of what is effective and efficient. However that is my first impression only.
Make a difference and apply!
Posted: Thu Apr 14, 2005 11:30 pm
by JFH
GG
PM me and we'll talk about nominations.
I'm out of the country till early next week but will reply on my return.
If only MS really was just for a week!
Posted: Mon Apr 18, 2005 5:38 am
by TwistedHelix
No, I didn't know it was MS week, either, which is bizarre as it's always referred to as the most common neurological condition. Have you noticed how, whenever there's a news item about some advance in general CNS repair, they always, always, ALWAYS mention Alzheimer's and Parkinson's, never MS.
My doctor never told me MS could make me invisible, if he had, I'd have robbed a bank!
Posted: Mon Apr 18, 2005 9:18 pm
by deehammer
Yeah, I did notice that Twisted! Crazy, huh. Did you also notice that for as long as ms has been around, it is only in recent years that I have heard more about it. My cousin has had it for 30 years and when she was dxed, noone knew what it was in my family. I think that is has something to do with Montel, Richard Pryor, David Lander, and Anette having it. Just talking out my rear. Insomnia, what a drug!
Dena