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My Husband is Newly Diagnosed
Posted: Thu Jun 16, 2005 11:34 am
by jsmith
My husband was recently diagnosed with MS after years of suffering and not knowing what was causing this suffering. As his caregiver, I cannot seem to find much information.
What are our rights legally? How do we manage financially? Where can I go for support groups? I have so many questions and I don't know where to turn to find the answers. I was wondering what your stories were for when you or your loved one was first diagnosed with MS. Where did you turn? Do you have any tips for caregivers? For people that are newly diagnosed? Please, any information at all would be useful. Thank you so much.
Jessica
Posted: Thu Jun 16, 2005 12:39 pm
by dignan
I can point you to a few online MS resources for newly diagnosed individuals that should be helpful.
Accelerated Cure Project publication for newly diagnosed:
http://www.bostoncure.org/downloads/bcp ... tsnext.pdf
U.S. National MS Society page on living with MS:
http://www.nationalmssociety.org/living%20with%20ms.asp
Canadian MS Society page for newly diagnosed:
http://www.mssociety.ca/en/information/newdiagnosed.htm
UK MS Society page for newly diagnosed:
http://www.mssociety.org.uk/just_diagnosed_pathway/
Posted: Thu Jun 16, 2005 1:50 pm
by adjanimals
Jessica,
The first thing to do is get in to touch with you local MS Society.
Your husband's doctor should have pointed you in that direction.
Good luck to you both.
ADJ
Posted: Fri Jun 17, 2005 12:31 am
by DenverCO
Jessica,
Look up the Multiple Sclerosis Association of America (
www.msaa.com) and call their helpline at (800) 532-7667. They can help you with all of your concerns.
Posted: Fri Jun 17, 2005 9:56 am
by CCmom
My son is 17, and was diagnosed at age 13. I understand totally how you are feeling right now. There is some excellent advice in the posts above, but for yourself, do just exactly what you are doing...Learn all you can. Some of the fear and anxiety will subside as you become more informed. This is a fantastic sight, and there are many others out there. If you would like some more links, private message me and I will send them to you. Take care!
Kim
Thank you so much
Posted: Thu Jun 30, 2005 5:46 am
by jsmith
Thank you to everyone who is taking the time to help. Those links were very useful and my husband and I are slowly learning how to manage. He's also slowly coming to terms with his diagnosis, although I know that it will still take a lot of work. Thank you all for your support.
Jessica
Posted: Wed Jul 06, 2005 1:37 pm
by art
Someone already pointed out our booklet for the newly diagnosed (thanks!) so I'll add a few more resources we have:
Daily news updates on MS:
http://msnews.acceleratedcure.org
Some more documents, interviews, book reviews
http://www.acceleratedcure.org/msresources/library.php
Other documents (not ours) and pointers to other MS organizations
http://www.acceleratedcure.org/msresources/other.php
Feel free to contact me if you have questions, I'm happy to help out.