Website MSM2
Posted: Fri Aug 13, 2010 1:30 am
Hi Everyone
Long time lurker, first time poster.
This is something which I posted over at the MS Society UK forums. Its had quite a good response so I thought I would post it here too. Apologies if you have now seen it twice.
I am interested in finding out what people with MS have in common. After being diagnosed with MS one of the first questions that hit me was “well...why me?”. As most of you probably already know, MS is believed to be caused partly by your genes but partly by “environmental causes”. No one really knows what these environmental causes are (though there is speculation it could be a few things – like vitamin D for example). I see discussions pop up on the forums now and again where people discuss peculiar things that we seem to have in common. I think that it would be at least “interesting” to know what these things are (knowledge is power!) and at most it might help work out what things make MS worse and how to avoid them (but I know that’s incredibly optimistic!).
I’ve put a website up where people with MS can vote on things they have in common (also people without MS for a comparison). You can find the link in my profile.
If you have some free time please stop by and vote on things, or ideally see if you can add more. Its just an experiment so I don’t know how useful it will be or if anyone will be interested in the slightest, but I hope people are and I thought it was worth a shot. There was quite a bit of interest from people on the MS Society UK forums. If no one cares and it flops I promise never to mention it again!
How useful the whole thing turns out to be depends on repeat visits so if you are interested remember to come back! Or ideally sign up for the weekly email alert so you get an email (on a Friday morning) letting you know there is new stuff to vote on that week.
More info in my profile or on the site itself, and as always feedback is more than welcome.
Thanks for your time
Lewis
Long time lurker, first time poster.
This is something which I posted over at the MS Society UK forums. Its had quite a good response so I thought I would post it here too. Apologies if you have now seen it twice.
I am interested in finding out what people with MS have in common. After being diagnosed with MS one of the first questions that hit me was “well...why me?”. As most of you probably already know, MS is believed to be caused partly by your genes but partly by “environmental causes”. No one really knows what these environmental causes are (though there is speculation it could be a few things – like vitamin D for example). I see discussions pop up on the forums now and again where people discuss peculiar things that we seem to have in common. I think that it would be at least “interesting” to know what these things are (knowledge is power!) and at most it might help work out what things make MS worse and how to avoid them (but I know that’s incredibly optimistic!).
I’ve put a website up where people with MS can vote on things they have in common (also people without MS for a comparison). You can find the link in my profile.
If you have some free time please stop by and vote on things, or ideally see if you can add more. Its just an experiment so I don’t know how useful it will be or if anyone will be interested in the slightest, but I hope people are and I thought it was worth a shot. There was quite a bit of interest from people on the MS Society UK forums. If no one cares and it flops I promise never to mention it again!
How useful the whole thing turns out to be depends on repeat visits so if you are interested remember to come back! Or ideally sign up for the weekly email alert so you get an email (on a Friday morning) letting you know there is new stuff to vote on that week.
More info in my profile or on the site itself, and as always feedback is more than welcome.
Thanks for your time
Lewis