RRMS vs PPMS, diagnostic criteria
Posted: Fri Sep 16, 2005 9:31 am
My apologies in advance, I never seem to contribute to these forums, only ask more questions but here goes.
I know there are short textbook explanations of difference between relapsing-remitting and primary progrssive forms of MS. But they leave me completely confused.
If anyone has been diagnosed as PPMS (or rediagnosed from RR to PP) can you please provide info on what exactly were both the criteria and the clinical syptoms and/or MRI results that led to the diagnosis?
I'm worried that I have PPMS because (1) I didn't completely recover from my first/only episode in January (2) I haven't had another episode/relapse (3) instead of relapse I've had sensory symptoms that are vague but accumulating (4) the lack of enhancing lesions on my MRI, which I celebrated, is in fact apparently, consisten with PPMS (5) I have a lesion at C1, apparently also consistent with PPMS.
On the other hand. I just did my longest/easiest run in 5 years. I'd have to go way back (i.e. years before any of the MS stuff emerged) for a similar accomplishment. I keep trying to focus on stuff like that but am I kidding myself??? Is physical strength/endurance relevant at all?
Sincerely and with thanks.
LJM
I know there are short textbook explanations of difference between relapsing-remitting and primary progrssive forms of MS. But they leave me completely confused.
If anyone has been diagnosed as PPMS (or rediagnosed from RR to PP) can you please provide info on what exactly were both the criteria and the clinical syptoms and/or MRI results that led to the diagnosis?
I'm worried that I have PPMS because (1) I didn't completely recover from my first/only episode in January (2) I haven't had another episode/relapse (3) instead of relapse I've had sensory symptoms that are vague but accumulating (4) the lack of enhancing lesions on my MRI, which I celebrated, is in fact apparently, consisten with PPMS (5) I have a lesion at C1, apparently also consistent with PPMS.
On the other hand. I just did my longest/easiest run in 5 years. I'd have to go way back (i.e. years before any of the MS stuff emerged) for a similar accomplishment. I keep trying to focus on stuff like that but am I kidding myself??? Is physical strength/endurance relevant at all?
Sincerely and with thanks.
LJM