This Is MS Multiple Sclerosis Knowledge & Support Community

Just curious how many dx's you have had before or after being dx'ed with MS. I was first dx'ed with transverse myelitis, then syringomyelia, 6th nerve palsy and then MS. My latest MRI shows possible mastoiditis and I've maybe had one earache in my entire life! It's one thing after the other and I am trying to stay so positive and enjoy my life...while all the time anxious to see an acceptance letter from disability in my mailbox. *sigh*...

Also...do you have pain with MS? I have a lot of pain from the 1st two diagnoses but after being dx'ed with MS...the pain is almost intolerable some days. Mostly in the legs and feet...my feet feel like cement and hurt so bad...along with pain comes the imaginary 20 pound sandbags attached to each leg.

Love this site and look forward to talking with as many people as possible. Love, Peace and Kindness...

My GP told me it was chronic hyperventilation when I went to him about pins and needles in my feet (Aug 2010)

The buffoon duty nurse / Doc at Casualty told me my Optic Neuritis was a migraine (Nov 2010)

The cretin junior Opthal told me it was Temperal Artertis (Nov 2010)

The Indifferent Consultant told me it was probably Optic Neuritis (Nov 2010)


Had to fly back to Saudi and in 24 hours my US Doc got me in hospital and Jordanian Neuro had me treated inside 24 hours (Nov 2010)

God help anyone else with MS at the Mercy of the NHS

On the subject of Pain

Only mild transient pain. I get mild tingling, occasionally a temporary spasm in my thigh, and an ache in my eye which had neuritis.

Then again - I was diagnosed in Nov 2010 and dont recall symptoms before Spring 2010. Who knows where i go from here

I was told transverse myelitis at first-no brain lesions, no real inflammation on spine. turned out tp be primary prog MS after ruling out Devics, lupus, sarcoidosis,etc.

I have muscle pain from spasticity. taking Baclofen and Tizanidine, just starting Tridural to see if it helps with pain.

Insomnia, Depression (the classic: it's all in your head, once diagnosed I called every doctor who blamed symptoms I brought them on depression to tell them to get fucked) Restless Leg Syndrome, Carple Tunnel (when I had hand twitches), Migraines, "loose joints", I had one doctor tell me my periods of emotionality were Bi-Polar disorder, along the way to my double vision getting me diagnosed I had doctors tell me eye strain (thank god I didn't listen to this doctor and wait for it to pass) and 6 nerve palsy.


Oh Oh Oh i forgot the best one, one of my symptoms is that I sometimes go through periods of ED, and I had a doctor tell me it was because I was gay. (which I'm not, he was saying I was gay because I was getting it with my girlfriend)

And yes, lots of people have pain from it, that was the big symptom that my doctors dismissed as depression.