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Need Advice For Hubby

Posted: Tue Mar 29, 2011 5:50 pm
by Debb
I need advice. My husband was diagnosed in 2009. He has had chroic pain from feet tingling and tightness in legs. Daily regement is Copaxone, Clonazapan( for myoclonic jerks) and Venlafaxine. He has taken cymbalta, lyrica, gabapentine, Carbamazepine with no positive results. any suggestions?

Posted: Wed Mar 30, 2011 12:53 am
by Wonderfulworld
Hi Debb
sorry to hear your husband is in pain. Has he tried amitriptyline? I think it was under the brand-name of Elavil in the US/Canada. I take it for neurological pain, it works well. HTH

Posted: Wed Mar 30, 2011 5:00 am
by Filmmaker
Cranio sacral therapy, vit B12, and stretching all help with this...

Posted: Wed Mar 30, 2011 6:51 am
by Debb
Wonderfulworld wrote:Hi Debb
sorry to hear your husband is in pain. Has he tried amitriptyline? I think it was under the brand-name of Elavil in the US/Canada. I take it for neurological pain, it works well. HTH
Thanks WonderfulWorld,

I checked our records and he has never taken amitriptyline but he was perscribed Nortriptyline by his primary prior to his diagnosis in neurology. it seems that they act in a very similar fashion. when he was taking Nortriptyline he had a noticably increased appetite and was very irritable so the Neuro said he was allergic and changed him to the next drug on the wheel of fortune. We will ask about amitriptyline at our next appointment.

Thanks again,

Debb :?

Posted: Wed Mar 30, 2011 6:54 am
by jml945
I haven't been dx'd but I get terrible neurological pain in my legs and have been prescribed several of the drugs your husband has been on, none of them seem to work at all.

Posted: Wed Mar 30, 2011 1:00 pm
by Wonderfulworld
I checked our records and he has never taken amitriptyline but he was perscribed Nortriptyline by his primary prior to his diagnosis in neurology. it seems that they act in a very similar fashion. when he was taking Nortriptyline he had a noticably increased appetite and was very irritable so the Neuro said he was allergic and changed him to the next drug on the wheel of fortune. We will ask about amitriptyline at our next appointment.
That's a shame about the side-effects on Noritrip Debb. To be honest I get very irritable on amitrip too but my dose is low at 25mg, and I have to weigh up not sleeping vs. a bit of grumpiness on ami and sleeping ok. Wish there was just a wonder drug that would work without the nasties! Hope your hubby gets on well at the next appt. [/quote]