Hubby's Appointment
Posted: Tue Oct 04, 2005 2:27 pm
Hubby had his appointment at Sunnybrook today and he is at an EDSS of 1 now and it would have been zero without the eye(optic neuritis) counting in. Back in June he was EDSS of 2.5 They were very pleased. They are pretty sure since he just started copaxone on July 4.2005 it is not a controlling factor. They asked what else we were on so I gave them the list. Kathleen says it is so hard to tell what has affected hubby for the better. He doesn't have to go back for a year unless he notices anything unusual. They say since the numbness and tingling as well as burning went away in June of this year after nearly a year that is unusual as you don't usually get improvement after 6 months. Now his eye exam was rather sketchy as it wasn't done on the machines just following objects and such. So I'll monitor it myself. I asked about the new blood test for MS but it was nothing they know anything about although they had heard of it. They also don't know about or haven't gone through the new data from the Ectrims as of yet.