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anyone seriously tried or thought about HSCT and decided aga

Posted: Sat May 21, 2011 10:35 am
by shucks
My google fu seems to come up with article after article in re HSCT and the beam protocol as stopping progression of the disease in 600 people. I seems the last trial is closed, but it will be years before it is available in the US.

What do you guys think of it, and as smart, unbiased folks, would you ever consider going to some place it is approved, like germany, to have it done? My biggest issue is how normal, young people could come up with over 100k to have it done, even with a nearly 80% published success rate at stopping the progression of the disease at 3yrs. I asked here to get a good cross section of members opinions.

Thanks guys

Re: anyone seriously tried or thought about HSCT and decided

Posted: Sat May 21, 2011 11:32 am
by civickiller
shucks wrote: My biggest issue is how normal, young people could come up with over 100k to have it done
that's my biggests question, having been diagnosed at 25 during my last year of college