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First Solu-Medrol Adventure

Posted: Fri Aug 19, 2011 5:29 am
by KyleW
Last evening I got my first of 5 daily IV Solu-Medrol infusions, 1g in 100ml. The results have been about a 50% improvement across the board. My double vision has lessened. I don't look quite so drunk when I walk down the street. And the Cog Fog seems to have lifted a bit. I have had very minimal side effect impact. I woke last night a little clammy and the only taste issue I have is plain water. It just tastes strange. All in all I'm very happy with the results. My questions is will my symptoms continue to improve as I go through the 5 days, or is most of the improvement felt immediately?

Thanks,
Kyle

Posted: Fri Aug 19, 2011 7:54 am
by munchkin
I have only gone on steroids twice. Once for three and that time took till the 3rd day before I noticed any changes. The time on 5 days was a major relapse and I didn't notice anything until after the 5 days was done. It took another 2 weeks before I felt a little MS normal.

Posted: Mon Aug 22, 2011 7:08 am
by KyleW
Today will be my 5th, and sadly last, infusion. The improvement has beem remarkable. Tomorrow I go on step down oral steroids. My hope is the improvements that resuled from the IV version have some staying power.

Posted: Wed Aug 24, 2011 6:45 pm
by ikulo
Hey KyleW... have you experienced any other side effects? What kind of symptoms did you have before?

Posted: Wed Aug 24, 2011 11:02 pm
by KyleW
The only real side effect I had from the steroids was some exaggerated heat response and a couple of hot flashes. My main symptoms were serious leg weakness, double vision and overall fatigue.

Posted: Thu Aug 25, 2011 7:08 am
by ikulo
Thanks Kyle. I've yet to experience steroids, but with increasing leg weakness and decrease in sensation throughout my body I've been considering getting on something to stop this newest pseudorelapse. I've been worried about all the short term side effects. Helps to know no everyone experiences the severe effects.

best of luck!

Posted: Thu Aug 25, 2011 7:48 am
by KyleW
It seems they can be a bit of a double edged sword, but they helped me far more than they hurt :)