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Many people with MS report difficulty walking
Posted: Thu Oct 20, 2011 2:01 am
by MSUK
Many people with MS report difficulty walking or maintaining balance
Walking difficulties or trouble with balance affect the majority of people with multiple sclerosis, and 70% of people with MS-related walking difficulties report that trouble walking is the most challenging aspect of MS. Yet, 40% of people with MS "rarely or never" discuss walking problems with their doctor, according to the results of a June 2011 survey conducted online by Harris Interactive on behalf of the National Multiple Sclerosis Society (NMSS) and Acorda Therapeutics ®, Inc.
The results of the survey of more than 1200 adults living with MS were presented today at the 5th Joint Triennial Congress of the European and Americas Committees for Treatment and Research in Multiple Sclerosis (ECTRIMS/ACTRIMS) in Amsterdam, the Netherlands... Read More -
http://www.msrc.co.uk/index.cfm/fuseact ... ageid/1693
Re: Many people with MS report difficulty walking
Posted: Fri Oct 21, 2011 11:44 am
by Azaeleaprawn
Other than back pain, trouble with walking/balance has been my major MS issue for the last four years and when ever I mentioned it to my GP she acted like it wasn't her problem. But then again I wasn't diagnosed with SPMS until a month ago so I think she just thought I was a chronic complainer.
I did go for physio therapy but until now I hadn't managed to find one that got to the bottom of my problems. Now I found a physio through the MS Society who specializes in treating MS issues and is giving me specifically targeted exercises and they are working.
Next on the agenda is to find a new GP and try LDN as I hear that helps with walking issues.
Re: Many people with MS report difficulty walking
Posted: Sat Oct 22, 2011 1:10 am
by Sunnee
I naturally presumed that they knew this already and that is why they wanted to observe my gait as I was asked to walk up and down so they could.
It is a big eye opener that they didnt automatically realise else why the interest in my gait.
It now heartens me that over the years I have done my own investigations as to why I was affected in this way. And it is down to problems in my cervical spine (neck) which caused other problems as my lower spine twisted, and caused further misallignments and nerve problems causing spasm and tremor.
These are my conclusions not what I have been told ok
I believe that subconsciously adapted to these problems to try and stay on my feet, but eventually lost the fight as the degree of affect became to great.
I am now in the process and through a Chiropractor, Neuro Physiotherapist of rectifying the damage that has occurred. I always knew I had a problem with my neck and I was right.
It is imperative that others like myself persue the lines of enquiry into UCC , we use our necks in almost every move that we make, its important that it is correct.
The damage that my spine has suffered has been over a 10 year period, rectifying it wont happen over night but it will happen that I do not doubt.
Sunnee
Re: Many people with MS report difficulty walking
Posted: Sun Oct 23, 2011 8:58 am
by Sunnee
Squiffy,
Still trying to get my head round this one, how they didnt know I dont know, they must have known its taken them 50 plus years to realise wow!
Re: Many people with MS report difficulty walking
Posted: Sun Oct 23, 2011 12:41 pm
by mrbarlow
Sunnee wrote:Squiffy,
Still trying to get my head round this one, how they didnt know I dont know, they must have known its taken them 50 plus years to realise wow!
LOL
In other news - Bears take a cxxp in the Woods!
Re: Many people with MS report difficulty walking
Posted: Sun Oct 23, 2011 10:12 pm
by sou
Breaking news!
New land has been discovered beyond the Atlantic ocean!
They (the researchers) are totally idiots! Why (should we) report difficulty walking, since it's obvious and the well respected, ultra specialists, PhD, MD, JVC have no solution? Oh, sorry. They have the "brand new" baclofen... Yeah!!!
LOL!
Edit: Made myself a little more clear.
Re: Many people with MS report difficulty walking
Posted: Mon Oct 24, 2011 7:15 am
by Sunnee
Sorry mr. b I didnt mean to sounds flippant or try and be funny, on the contrary this is serious stuff, a massive oversight, no theres nothing funny in this.
Sunnee
Re: Many people with MS report difficulty walking
Posted: Mon Oct 24, 2011 10:08 am
by sou
Well, I did want to sound funny. This research is ridiculous. That is my humble opinion, though.
Re: Many people with MS report difficulty walking
Posted: Tue Oct 25, 2011 3:13 am
by mrbarlow
This^
Re: Many people with MS report difficulty walking
Posted: Tue Oct 25, 2011 3:15 am
by mrbarlow
sou wrote:Well, I did want to sound funny. This research is ridiculous. That is my humble opinion, though.
Quite. Id like to apply for research funds to research what direction the sun rises from in the morning
Re: Many people with MS report difficulty walking
Posted: Tue Oct 25, 2011 5:40 am
by Sunnee
I didnt read the whole article only the first bit about Neuros not being aware of balance probs.
I dont read about research etc as I believe it to be a total waste of my time. now that I do find rediculous the amount of stuff that researchers come up with.
But then thats just my opinion
Sunnee
Re: Many people with MS report difficulty walking
Posted: Sun Nov 20, 2011 7:47 pm
by Azaeleaprawn
A man with MS walks into a bar and says, "Give me a beer before problems start!" Again, the man orders a beer again saying, "Give me a beer before problems start!" The bartender looks confused. This goes on for a while, and after the fifth beer the bartender is totally confused and asks the the man with MS, "When are you going to pay for these beers?" The man answers, "Ah, now the problems start!"
Personally I'd say medical practitioners trying to manage MS symptoms are the problems especially when they're not aware that we have trouble walking. I mean seriously what is wrong with their vision.....hello I'm not walking very well and you're my physician.