Leg ms, brainstem ms, cognitive ms, what type is yours?
Posted: Sun Jan 01, 2012 4:11 am
Ms is a highly variable disease. In other words, in different people ms presents itself in very differing ways. Two people with ms may not have much in common as regards symptoms, degree of disability, pace of progression, severity of the attacks and so on.
How would you describe your version of ms?
Let me start. I have had ms for roughly six years. I am a woman of late thirties.
Firstly, i would say that my ms is foremost presenting itself as the dysfunction of alertness and circadian rhythms, read daytime fatigue and sleeplessness at night.
The second problem is autonomic dysfunction. Heartbeat irregularities, regulation of perspiration, severe adult acne, constipation. Thirdly I have intense pain episodes in my jaw/cheek/neck area. It looks like it could be classified as atypical trigeminal neuralgia.
Also I have problems with hearing loss and episodes of nausea.
I do have some cognitive problems but my basic ability is good, so thus far I don't have a problem with this. But for years I have had problems with irritation, concentration and I find noisy environments with a lot of crowds increasingly unpleasant. Multitasking has always been unpleasant, too. In this sense, I have always been "a mental male", I guess! But I think these count as cognitive problems anyway.
Psychologically my mood has always been pretty volatile, up and down. Diagnosed with depression, though. Who would'nt be, with this disease. On SNRI pills.
I guess my ms is different from the standard as I don't have much problems with eyesight so far, nor with walking.
These six years have been very frustrating because neurologists and doctors are so hooked up with ms being a primarily a mobility issue. WHich is not always the case. I mostly look well, no one could see that there is something wrong with me. But when someone gets to spend more time with me, s/he will notice that I get easily tired, have to rest a lot, might become suddenly
fatigued, have to cancel activities often, have to take pain and other meds often, want to spend most of my time in peace and quiet.
My ms is classified as rather active, lots of lesions, still relapsing-remitting, still no permanent disabilities really. I have been two years on temporary disability pension. Most of the time doing ok. Haven't been on dmds. Five times pulse steroids.
I would really like to hear how you other people describe your ms! For me figuring this all out and studying things by myself has been pretty challenging. It is so hard to grab these ameba like things. Neurologists just do some of the technical work, very few of them have helped me to understand and name the phenomena I've been going through. Hope to hear your views on this.
Athina
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Edit: Subject line modified
How would you describe your version of ms?
Let me start. I have had ms for roughly six years. I am a woman of late thirties.
Firstly, i would say that my ms is foremost presenting itself as the dysfunction of alertness and circadian rhythms, read daytime fatigue and sleeplessness at night.
The second problem is autonomic dysfunction. Heartbeat irregularities, regulation of perspiration, severe adult acne, constipation. Thirdly I have intense pain episodes in my jaw/cheek/neck area. It looks like it could be classified as atypical trigeminal neuralgia.
Also I have problems with hearing loss and episodes of nausea.
I do have some cognitive problems but my basic ability is good, so thus far I don't have a problem with this. But for years I have had problems with irritation, concentration and I find noisy environments with a lot of crowds increasingly unpleasant. Multitasking has always been unpleasant, too. In this sense, I have always been "a mental male", I guess! But I think these count as cognitive problems anyway.
Psychologically my mood has always been pretty volatile, up and down. Diagnosed with depression, though. Who would'nt be, with this disease. On SNRI pills.
I guess my ms is different from the standard as I don't have much problems with eyesight so far, nor with walking.
These six years have been very frustrating because neurologists and doctors are so hooked up with ms being a primarily a mobility issue. WHich is not always the case. I mostly look well, no one could see that there is something wrong with me. But when someone gets to spend more time with me, s/he will notice that I get easily tired, have to rest a lot, might become suddenly
fatigued, have to cancel activities often, have to take pain and other meds often, want to spend most of my time in peace and quiet.
My ms is classified as rather active, lots of lesions, still relapsing-remitting, still no permanent disabilities really. I have been two years on temporary disability pension. Most of the time doing ok. Haven't been on dmds. Five times pulse steroids.
I would really like to hear how you other people describe your ms! For me figuring this all out and studying things by myself has been pretty challenging. It is so hard to grab these ameba like things. Neurologists just do some of the technical work, very few of them have helped me to understand and name the phenomena I've been going through. Hope to hear your views on this.
Athina
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Edit: Subject line modified