HELP: Does anyone with the MS Hug have experience with SCS?
Posted: Wed Jan 18, 2012 5:39 am
Horrible relapse.
Ready to leap from overpass.
Instead of pain pump, pain mngt doc is only offering SCS aka Spinal Cord Stimulation (wires with electrodes threaded alongside cord interfere with pain signals for, at best, 50% reduction in pain).
Wires would enter in Lumbar region: one extra-long to reach up to T1 for horrific MS Hug pain; one normal length to reach down to S1 for also horrific perineum pain (wires permanently scar into body, can break and injure cord at any time, cause shorts and/or painful *zaps* and more).
Does anyone with the MS Hug have experience with and/or knowledge of SCS (second-hand accounts welcome)? If yes, does/did it help? Where was battery pack implanted (abdomen, side of torso, above buttuck)? What kind of remote is/was used to control battery? Would you do it again?
MS Hug feels like boa constrictors are squeeeezing me to death, sharks are feeeeding on my sides, 5,000 lb elephants are crrrrushing my chest, and verrrry sharp knives are repeatedly stabbing under my front, left rib cage. (100 mg/day of opiates not touching pain).
Thank you.
Ready to leap from overpass.
Instead of pain pump, pain mngt doc is only offering SCS aka Spinal Cord Stimulation (wires with electrodes threaded alongside cord interfere with pain signals for, at best, 50% reduction in pain).
Wires would enter in Lumbar region: one extra-long to reach up to T1 for horrific MS Hug pain; one normal length to reach down to S1 for also horrific perineum pain (wires permanently scar into body, can break and injure cord at any time, cause shorts and/or painful *zaps* and more).
Does anyone with the MS Hug have experience with and/or knowledge of SCS (second-hand accounts welcome)? If yes, does/did it help? Where was battery pack implanted (abdomen, side of torso, above buttuck)? What kind of remote is/was used to control battery? Would you do it again?
MS Hug feels like boa constrictors are squeeeezing me to death, sharks are feeeeding on my sides, 5,000 lb elephants are crrrrushing my chest, and verrrry sharp knives are repeatedly stabbing under my front, left rib cage. (100 mg/day of opiates not touching pain).
Thank you.