Posted: Tue Jan 17, 2006 9:43 am
Deb, I agree with you completely. Not only is research fractured but so are our docs. The neuro does not know what the PNI person does or what the phamacist does or the psychoiatrist.
You know as a follow up, the lucchinetti team did a 4.4 year recheck on those people who'd had brain biopsy's in the original research above. There had been as usual scientific debate about this work in that some complained that these may have been atypical cases and not the usual MS patients as we see in clinics. What the team found was that the people all exibited the usual RRMS pattern we all recongnize, again reaffirming that the lesions are heterogenous while the clinical presentation seems similar. There was also no correlation to EDSS from the lesion types known based on the biopsy. http://www.ncbi.nlm.nih.gov/entrez/quer ... med_docsum
Again I want to refer you to the link in the earlier post showing that people with one type of lesion with complement were greatly helped by filtering the blood while the other two types were not
Every one of us a a trial of one until they find a way to hone in on this.
If copaxone helps everyone you know with MS you still have to try it on yourself to know if it helps you personally. It does not matter that it's "approved" It's not known if it will help you until you do it becasue God only knows what your "MS" is, if it even is one of these 4 lesion types and not another disease altogether.....
marie
You know as a follow up, the lucchinetti team did a 4.4 year recheck on those people who'd had brain biopsy's in the original research above. There had been as usual scientific debate about this work in that some complained that these may have been atypical cases and not the usual MS patients as we see in clinics. What the team found was that the people all exibited the usual RRMS pattern we all recongnize, again reaffirming that the lesions are heterogenous while the clinical presentation seems similar. There was also no correlation to EDSS from the lesion types known based on the biopsy. http://www.ncbi.nlm.nih.gov/entrez/quer ... med_docsum
Again I want to refer you to the link in the earlier post showing that people with one type of lesion with complement were greatly helped by filtering the blood while the other two types were not
Every one of us a a trial of one until they find a way to hone in on this.
If copaxone helps everyone you know with MS you still have to try it on yourself to know if it helps you personally. It does not matter that it's "approved" It's not known if it will help you until you do it becasue God only knows what your "MS" is, if it even is one of these 4 lesion types and not another disease altogether.....
marie