Your thoughts on my dx journey?
Posted: Tue Feb 28, 2012 11:25 am
37 year old male. Unrelated but I had a major heart attack last June due to blockage.
Later around October I was admitted to the hospital and had a brain, cervical and thoracic MRIs where the neuro found lesions on the spine and brain. The brain lesions were consistent with M.S. lesions in regard to shape and location.
My mother was dx about 25 years ago and given this and the MRI, my neurologist determined me "possible" for M.S.
I had evoked potentials performed. VEP were consistent with optic neuritis. AEP was fine. SEP was consistent with bilateral posterior tibial neuropathies.
After the evoked potentials, neuro determined me to be "probable" for M.S.
Here's the problem and why my anxiety level is so high. I had a drug coated stent inserted when I had the heart attack. I have to take blood thinners for another four months with no chance of stopping them early. (My heart attack was in my left anterior descending artery - widowmaker - which, if the stent collapses or clogs, I will likely die.) This means that I can't have a lumbar punch performed for at least another 4-1/2 months when I can come off of the blood thinner.
For what it is worth, over the years I have had sciatica problems and other nerve issues for which I never visited more than my GP. Recently my groin/thigh area, lower back and down to my left toes hurt so bad that I could not walk for several days.
So you can probably tell from my post I am anxious to have the lumbar puncture performed to either confirm or squash the M.S. theory.
What are your thoughts given the information that I have provided. Family history, MRI, evoked potentials, etc? Do you think that there is a high chance that the CSF is going to support the M.S. diagnosis?
Thanks, I am really struggling with whether or not to start another M.S. drug. I tried Copaxone and could not handle the injection site side effects. Now I just feel like I am in limbo until I can have further test done. On one hand I don't want to try another drug because I may just be injecting myself needlessly. On the other hand, I may be losing 4-1/2 months of prevention.
Any feedback would be greatly appreciated.
Brad
Later around October I was admitted to the hospital and had a brain, cervical and thoracic MRIs where the neuro found lesions on the spine and brain. The brain lesions were consistent with M.S. lesions in regard to shape and location.
My mother was dx about 25 years ago and given this and the MRI, my neurologist determined me "possible" for M.S.
I had evoked potentials performed. VEP were consistent with optic neuritis. AEP was fine. SEP was consistent with bilateral posterior tibial neuropathies.
After the evoked potentials, neuro determined me to be "probable" for M.S.
Here's the problem and why my anxiety level is so high. I had a drug coated stent inserted when I had the heart attack. I have to take blood thinners for another four months with no chance of stopping them early. (My heart attack was in my left anterior descending artery - widowmaker - which, if the stent collapses or clogs, I will likely die.) This means that I can't have a lumbar punch performed for at least another 4-1/2 months when I can come off of the blood thinner.
For what it is worth, over the years I have had sciatica problems and other nerve issues for which I never visited more than my GP. Recently my groin/thigh area, lower back and down to my left toes hurt so bad that I could not walk for several days.
So you can probably tell from my post I am anxious to have the lumbar puncture performed to either confirm or squash the M.S. theory.
What are your thoughts given the information that I have provided. Family history, MRI, evoked potentials, etc? Do you think that there is a high chance that the CSF is going to support the M.S. diagnosis?
Thanks, I am really struggling with whether or not to start another M.S. drug. I tried Copaxone and could not handle the injection site side effects. Now I just feel like I am in limbo until I can have further test done. On one hand I don't want to try another drug because I may just be injecting myself needlessly. On the other hand, I may be losing 4-1/2 months of prevention.
Any feedback would be greatly appreciated.
Brad