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I'm sorry if it seems like I'm spamming the board but I am FREAKING OUT. A few days ago I noticed a vibrating feeling in my right foot (like a tuning fork) when I bent my neck forward. When I woke up this morning the feeling was all the way up to my knee, and now it's all the way to the small of my back. I don't know what's happening, but I think it could be Lhermitte's sign? Does it normally progress this fast or at all? I'm meeting the doc tomorrow morning but I am terrified. Will it go away? Or am I just going to turn into a giant human tuning fork for the rest of my life. (sorry for the dramatics, just panicked.)

I'm mainly worried that this is a sign that lesions are popping up like weeds and I'll wake up and need a wheelchair in the morning. I only experienced my first symptom (optic neuritis) 4 months ago...

You don't come across as spamming. It's understandable to freak out from time to time. I consider it to be part and parcel of the condition. As to your leg, I really can't say.

it does sound like lhermitte's. i had quick ascending numbness when i got diagnosed. it mostly went away but i when the neuro tests my feeling in my feet (with an actual tuning fork funnily enough) he demonstrates that my feet are still a little numb. my hands are certainly still somewhat numb 6 yrs later. it's my 'new normal'.
it probably means there's an active c-spine lesion. can't say anything with certainty but a lot of ms patients have relapsing remitting, which means things tend to get better after they get worse.

thank's all for the replies. I'm feeling better mentally this morning, and I'm just about to head to the doctors so I'll keep you updated!

randilynn wrote:thank's all for the replies. I'm feeling better mentally this morning, and I'm just about to head to the doctors so I'll keep you updated!

good luck.

Hey randilynn, how are you feeling? Did the vibrations go away? I had it too and it was l'hermittes sign. It went away after a few months. My hands still feel "frostbitten" since Aug of 2011. I was Dx in December 2011. Hope you're doing better.