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Allergic reaction to Copaxone

Posted: Fri May 18, 2012 12:04 pm
by DMAG
I had a severe reaction after taking my Copaxone injection. I went to hospital and BP was 167/56. Was given drugs and when stable was released. Neuro suggested I see an Allergist for "desensitization". Went on 5/16 to have procedure however once again had a severe reaction halfway through procedure. Allergist wants to retry desensitization at a slower rate. I have been on Avonex, Rebif, Tysabri, and Copaxone all with negative effects. I don't want to go through this again but am having a difficult time making a decision as my Neuro says I "have no other choice" than to try to get back on Copaxone. If I say no I feel like I am giving up. Any suggestions would be helpful. I don't know where else to turn.
My family is very distraught watching me go through both the treatments and the effects of the allergic reactions as am I.

Re: Allergic reaction to Copaxone

Posted: Sun May 20, 2012 7:24 pm
by Loriyas
DMAG
Regardless of what the neuro says we always have choices. He is telling you the CRAB drugs plus Tysabri are the only choices because those are the "approved" drugs. Do lots of research including this site. You will see many of us choose other options (antibiotics, CCSVI, supplements,even diet just to name a few). Many people choose to be on nothing. So take your time to educate yourself so you can make the best decision for YOU.

Re: Allergic reaction to Copaxone

Posted: Sun May 20, 2012 7:35 pm
by MarkLavelle
DMAG wrote:...my Neuro says I "have no other choice" than to try to get back on Copaxone. If I say no I feel like I am giving up. Any suggestions would be helpful.
You need to ask your neuro about why he doesn't think you should try any of the half dozen other MS DMDs.

My neuro won't rx anything but C for me because I've already got a compromised immune system (cancer, chemo & radiation in the '90s), but that's the exception, not the rule...