Feeling pissy, Lemtrada, HiCy, Stem Cells, Lingo, CCSVI, ugh
Posted: Wed Jun 13, 2012 9:01 am
There are eleventeen things going on in MS that is beneficial and very possibly the end of progression for some. I still look over seas and our colder friends up north and I am jealous of the health care. Not even the doctors but the drug approval process. In most cases they get a drug from petri dish to human bloodstream faster.
Years ago, as some of you have heard, a friend of mine with MS was the head nurse working outside the office of the CDC. She was his right hand so to speak. Cindy said one day they were talking (early 90's) and she was talking about how she wished she could have a cure for MS. He chuckled and said, "I'm sorry but it will never happen. "
Needles to say Cindy was shocked. She asked how could this be? How can you be the head of the CDC and have no hope?
He responded, "In the 1950's Saulk cured the great menace Polio. Everyone thought that was great. Millions were vaccinated. 10 years later when everyone looked at how much money was lost by not treating it they were shocked. By now, (90's) we could have paid off the national debt more than once. All from just one disease. If they would have developed a drug to control it, or a repeat vaccine they would have made millions still. Well because of Polio you will never see another cure. You will see therapies, flu vaccines, and repeat treatments, but no elimination. There is no money in it"
So this is from the CDC. I get depressed sometimes because this damn disease is bad enough. There is nothing a doctor can really do. There isn't much we can do. The government decides what we can do with our own disease and no matter what you doc can only do what they say.
How the hell can we win?
Years ago, as some of you have heard, a friend of mine with MS was the head nurse working outside the office of the CDC. She was his right hand so to speak. Cindy said one day they were talking (early 90's) and she was talking about how she wished she could have a cure for MS. He chuckled and said, "I'm sorry but it will never happen. "
Needles to say Cindy was shocked. She asked how could this be? How can you be the head of the CDC and have no hope?
He responded, "In the 1950's Saulk cured the great menace Polio. Everyone thought that was great. Millions were vaccinated. 10 years later when everyone looked at how much money was lost by not treating it they were shocked. By now, (90's) we could have paid off the national debt more than once. All from just one disease. If they would have developed a drug to control it, or a repeat vaccine they would have made millions still. Well because of Polio you will never see another cure. You will see therapies, flu vaccines, and repeat treatments, but no elimination. There is no money in it"
So this is from the CDC. I get depressed sometimes because this damn disease is bad enough. There is nothing a doctor can really do. There isn't much we can do. The government decides what we can do with our own disease and no matter what you doc can only do what they say.
How the hell can we win?