This Is MS Multiple Sclerosis Knowledge & Support Community

Thanks for the link Merlin. So it can be proposed for MS very quickly.
Lib,
This report of 3 cases is from december 2011 so it’s quite new.
Nutrition is more about diet than probiotics. There is a diet section on this forum that discuss such and such diet. If you look at what those diet have in commons, you will see that it is to avoid gluten, dairy, sugar… All those think we have not evolved for eating. In France we have also two famous diets which are basically the same. Both were talking in their book about leaky gut syndrome. One by dr Kousmine who wrote a book called « MS is curable ? » in 1977 (she also recommands colonic irrigation). The other is dr Seignalet, who wrote a book called « nutrition or the 3rd medecine » who describes how all the modern diseases are caused by modern diet. Some have considered him as a fraud, others as a genius. Lorax2013 of youtube talk about him in this video

My neurologist does not agree with that too because "no scientific study has proven blablabla..." But my gastroenterologist said the neurologists should more worry about what happens in their patients gut.

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I agree with you, and you forgot to mention the lack of sun exposure. Vitamine D influence the gut microbiota and the immune system.
I don’t know what to think about the gut microbiota. I have read that it was builded up all along the life, starting with the vaginal bacteria of mothers. But in this paper, they say that it can be changed in a single day if a "humanised" mouse (mouse that had a FMT of human faeces) change diet from low fat diet to western diet.
http://www.congrex.ch/fileadmin/files/2 ... harcot.pdf
The microbiota seems to be very complex so perhaps there is certain part of it which can't be modified by diet only.

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But there has never been any clinical trial on MS yet.

Antibiotics are supposed to kill bad bacteria whereas the probiotics are supposed to favor the good ones.

There is an email adresse on the contact page of dr.Borody's website if you like.
http://www.cdd.com.au/pages/contact.html

FMT is a clinical treatment option offered at our centre, this is not a clinical trial and all costs are covered by the patient.

FMT is a treatment option for offered to those with the following conditions:

Clostridium difficile infections
Ulcerative colitis
Irritable Bowel Syndrome
Constipation
Crohn’s disease

FMT is not guaranteed to cure other conditions such as Multiple Sclerosis, Parkinson’s disease etc will need to be assessed on a case by case basis

Please send your email enquiry with a short summary of your disease history to overseas@cdd.com.au if you wish to book for a phone consultation. All correspondence regarding your consultation will be via this email address. Someone will then respond to your enquiry. Please note – responses to enquiries may take time.

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I have to say that personally I would not be trying this till a lot more information comes in.

However, a few years ago, here in Australia, a friend of mine who has suffered many years of IBS, went to a respected specialist in the field, and he suggested what I think is this exact same treatment for it. It made more sense for IBS, but when he told me, I advised against it (as a friend not a doctor).

My point is, I think this treatment may be more commonly available than you think, and therefore you may not need to travel overseas for it. Have you tried getting in touch with a local specialist who treats IBS? at the very least they would of heard of this treatment; its not one you quickly forget.

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Liberation wrote:I'm not sure if I got it right, but the specialist advised against it or you? What was the reason for that?

It was me, the specialist was offering the treatment as a possibility. The reason for my hesitation, is that if they had a sample of a number of people without IBS, and a number of people with IBS, more research should be done on the difference, and only culture and add that particular bacteria. ie They obviously had no idea how it really works (or if it does). It did not seem like science to me. That was also 10-15 years ago.

Liberation wrote:What I thought of is mainly getting some bad bacteria if things are not screened properly. That is surely is a potential risk.

I was also arguing that if they didn't know what helped, they also did not know what could hurt. Infections from things more serious than a bacteria would possibly be let through.

Liberation wrote:To me the fact that all three MS patients' conditions improved significantly seems very promising. However, I know what we read on the internet usually do not reflect reality.

Read the wonder stories about Aimspro when it first came out; they were remarkable. Not only has it not lived up to the hype, I have tried it and it did not work for me.

As for 3 patients, I actually found it more interesting, that in their small sample size of patients, they managed to "randomly" get 3 patients who had MS. What were the odds on that? Also, the fact that they were assigned to this treatment for another complaint, opens the possibility that maybe "their MS" was related to this other condition. So if you are not showing the other condition, I would hazard a guess the treatment is possibly a stretch for you. But I would love you to prove me wrong.

Liberation wrote:On the other hand, I feel that there is a huge risk with every available drugs, not to mention any new drug which does not have a long track record yet. Unfortunately, with MS even deciding to wait can bear a huge risk.

I understand, but at least we know a few thousand have gone before us, not 3.

Liberation wrote:I think what someone can lose by waiting for a new approved treatment will never be regained with what he waited for. So, I think many of us just takes chance with different diets, suppliments, CCSVI treatments, stem cells, etc.

I have tried MANY off-label treatments, none of which have really shown a true result. You are preaching to the choir. Also what is too little discussed, is the hope lost waiting for a new treatment.

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If you search for "gut multiple sclerosis" on Pubmed, you will find a bunch of study on this field including Berer's works.
http://www.ncbi.nlm.nih.gov/pubmed/?ter ... +sclerosis
There is a growing interest on this according to google trends.
http://www.google.com/trends/explore?hl ... ome&cmpt=q
You can also find a lot of videos on Youtiube. For example, a recent one:

This video is from the scweiz TV (in french), where they talk about Borody:
http://www.rts.ch/emissions/36-9/449952 ... L.facebook
The message is spreading !

Someone put the video of Shweiz TV on youtube with subtitles.
You can translate it in English with the options in the bottom right corner. The translation seems to be very good.

gibbledygook wrote:I deteriorated significantly after taking a powerful probiotic supplement... I wonder what is in a fecal microbiotic transplantation?!

poop, ideally from someone you are close with.

i think it is is shown to work I would do this, but... it's kinda gross.

That said, not as bad as having the sensation of a razor cutting open my foot for no reason randomly... right?

this treatment is now available in the UK at the Taymount clinic
http://www.taymount.com/