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I have been taking low dose naltrexone (LDN) for the past 4 years, which had halted my SPMS
However by the time i started LDN i was disabled - EDSS 6.0 at the time

Well in July 2011 i noticed it was uncomfortable sitting down, also that my legs were weaker and when in the shower felt the sore area and it just felt like a bump,

As i weight train and sometimes all on my bum, i assumed it was a sports iinjury
After a few weeks the pain subsided , so had no doubt it was just a temporary injury,

Well in May this year the soreness returned and i knew it wasnt sports related as i hadn't lifted weights for a while,
i came across a condition called Pilonidal Sinus which matched my situation perfectly:
http://www.nhs.uk/conditions/Pilonidal- ... ction.aspx
- my sinus is not extreme , just a discomfort when sitting, so i bought a coccyx cushion which removed the discomfort

Since recognising this is what it was in May i have been trying all the natural remedies before resorting to the doctor which would end in antibiotics and/or surgery,
and after reading the horrible experiences in the above link when patients go the conventional route i wanted to try natural first,

so since May i have experimented with Castor oil, tea tree oil, plastering the sinus,, and a few more, but since i started removing these treatments and just keeping the sinus clean and sitting on the coccyx cushion, the sinus has gone down a lot, and there is no discomfort when sitting now

However , my bladder has become more frequent, and my legs have become a lot more weaker and walking is very bad, but the sinus is fine

So im guessing , despite the LDN protecting me, i seem to have deteriorated , which im praying is only temporary and not permanent

So i was wondering if it is common for MS patients to develop pilonidal sinus?

Also wondering if any MS 'ers here have had P.S and what treatment they had?
Did your mobility return after treatment?

- i am due to see dr in 2 weeks so will mention it then

thank you

i

you already know i did yours are the only search results that come up but that doesn't mean there aren't other non-reporters out there, too...

dc10 wrote:So since May i have experimented with Castor oil, tea tree oil, plastering the sinus,, and a few more, but since i started removing these treatments and just keeping the sinus clean and sitting on the coccyx cushion, the sinus has gone down a lot, and there is no discomfort when sitting now

Have you looked into trying silvadene cream? It's often used for burns and wound healing. Note, you may need a doctor's prescription in order to get it.

http://www.mayoclinic.com/health/drug-i ... n/DR601953

NHE

i know JL,
Remind me , does yours re-appear every few months or year?

NHE, i havent tried this cream. but i will look into it,


Anyone other MS'rs experienced PS? what did you do?

Many years ago a friend of mine had this condition with symptoms very like yours. It was caused by an ingrown hair that grows into the sinus. If this is your issue it will need to be cut out and allowed to heal from the inside out so you will be not be going anywhere for a few weeks when the surgery is done. Get it seen to as the hair keeps growing and that can lead to complications eventually.
My friend did not have MS and I don't think this is a symptom of MS.
It's very common in people with a mediterrean ancestry but can affect anyone of either gender.

Regards

no, mine was a one time thing, so far. i had been slacking, this problem showed up, i just got really strict with my regimen and now it's gone. still have a bit of scarring but that's it.