New Here. MS since 2008
Posted: Thu Sep 20, 2012 2:28 pm
Hello,
New to site. I have had MS since 2008. Currently on Copaxone for treatment.
Previous treatments were Betaseron- could not tolerate and Tysabri- Tested postive for JC virus and doctor stopped treatement. I'm not seeing much change or anything on Copaxone. I feel like my walking has become more labored. I mostly suffer from pain in the hips and very stiff legs and my worst symptom has to be the horrible fatigue which I'm on medication for that as well.
I try to stay upbeat as I can but it's difficult. There are days I just really want to throw in the towel. I just can't imagine life like this forever if not worse but I do try to overcome it best I can. I'm working, and do not want to give up my job. I'm an RN. I have learned to pace myself and I know when to stay home. I can't allow my bad days to interfere with work. A bad day for me would be a really bad day for someone else and I'd never do that to anyone. I have good days but then I will have alot of bad days and this period of absolute just feeling horrible and not able to accomplish much of anything.
I never felt I had relapses ( I was Dx RRMS). Instead I feel like I have never really come out of one.
I could not deal with doing the shots daily so my doctor said every other day was fine, and didn't think that it would make much of a difference doing it that way vs everyday.
I'd love to hear thoughts from others.
Thank you..
New to site. I have had MS since 2008. Currently on Copaxone for treatment.
Previous treatments were Betaseron- could not tolerate and Tysabri- Tested postive for JC virus and doctor stopped treatement. I'm not seeing much change or anything on Copaxone. I feel like my walking has become more labored. I mostly suffer from pain in the hips and very stiff legs and my worst symptom has to be the horrible fatigue which I'm on medication for that as well.
I try to stay upbeat as I can but it's difficult. There are days I just really want to throw in the towel. I just can't imagine life like this forever if not worse but I do try to overcome it best I can. I'm working, and do not want to give up my job. I'm an RN. I have learned to pace myself and I know when to stay home. I can't allow my bad days to interfere with work. A bad day for me would be a really bad day for someone else and I'd never do that to anyone. I have good days but then I will have alot of bad days and this period of absolute just feeling horrible and not able to accomplish much of anything.
I never felt I had relapses ( I was Dx RRMS). Instead I feel like I have never really come out of one.
I could not deal with doing the shots daily so my doctor said every other day was fine, and didn't think that it would make much of a difference doing it that way vs everyday.
I'd love to hear thoughts from others.
Thank you..