Go in next week for confirmation of MS... so many questions.
Posted: Tue Oct 23, 2012 5:04 am
I went into the hospital a week ago for five days. After many tests and two MRIs they believe I have MS, but they are confirming with a spinal tap (MS Panel) that I should get back this or next week. It came as a big hit to me as a father of a 13 month old and have been pretty healthy up until now. On the MRIs they did see multiple white spots on my brain and cervix? It scared my wife and I as we thought it was the end of the world, but we are trying to stay positive.
Few thoughts running through my head until I get confirmation:
* How disabilitating is this disease? We've heard positive things about how its manageable and other scary comments from people we know about how they're in a wheel chair and can't do anything.
* Do people normally go see a MS specialist for this or just their neuroligist? I'm scheduled for a visit to an MS specialist to see what he says.
* I've begun reading on websites about the cost of the MS drugs and some are like $4k/month?!?! Someone we know said that her husband doesn't take anything because they're too expensive and I can see why now. Is this typical? Does insurance pay for any of it?
* What is the most common type of drug for MS? I've heard of rebiff or something like that.
* What can I expect if I have the typical MS? Do attacks leave you with problems? How often do the attacks occur and for how long?
Thank you for any help.
Adam
Few thoughts running through my head until I get confirmation:
* How disabilitating is this disease? We've heard positive things about how its manageable and other scary comments from people we know about how they're in a wheel chair and can't do anything.
* Do people normally go see a MS specialist for this or just their neuroligist? I'm scheduled for a visit to an MS specialist to see what he says.
* I've begun reading on websites about the cost of the MS drugs and some are like $4k/month?!?! Someone we know said that her husband doesn't take anything because they're too expensive and I can see why now. Is this typical? Does insurance pay for any of it?
* What is the most common type of drug for MS? I've heard of rebiff or something like that.
* What can I expect if I have the typical MS? Do attacks leave you with problems? How often do the attacks occur and for how long?
Thank you for any help.
Adam