Thoughts?
Posted: Tue Jan 08, 2013 11:45 am
Hi there. I'm new to this board (and to M.S.) and wanted some feedback on a problem I'm currently facing.
I was diagnosed with M.S. in September 2012 after a year of symptoms that were chalked up to anxiety disorder. After the MRIs confirmed the diagnosis and after a three-day hospitalization for an exacerbation, I was put on Copaxone. Because life is oh-so-amusing, I lost my job and health insurance right around the time I was diagnosed. I won't be insured until I get married in the spring (or find a job with benefits in the meantime) so for now, I am unable to be on the Copaxone due to the expense. I've submitted the paperwork to the pharm company to get the Copaxone for free but until that comes through, I'm not on it.
I am currently in the midst of an exacerbation that started over the holidays. My neurologist's on-call doctor told me to go to the ER for a direct admit for a course of IV steroids. Got it. The problem is (and I've told my neuro this a few times) that I can't afford it right now. I know that, ideally, that is the way to treat this but for now it just isn't an option, expense-wise and because I'm getting ready to start a temporary assignment in a few days and my fiance, kids, and I need the money desperately. My question is this: have any of you been treated for an exacerbation on an outpatient basis? At one time, it was mentioned that oral Solu-Medrol was an option but my neuro has now taken this off the table and is refusing to listen or meet me halfway on a treatment plan. The exact quote was: "Unless you agree to be hospitalized for this, I'm not going to treat you." So I'm left frustrated and feeling like crap.
Any thoughts? Is my neuro being exceptionally inconsiderate and should I try to keep fighting this? Am I in the wrong here? I feel like I need some new perspectives.
I was diagnosed with M.S. in September 2012 after a year of symptoms that were chalked up to anxiety disorder. After the MRIs confirmed the diagnosis and after a three-day hospitalization for an exacerbation, I was put on Copaxone. Because life is oh-so-amusing, I lost my job and health insurance right around the time I was diagnosed. I won't be insured until I get married in the spring (or find a job with benefits in the meantime) so for now, I am unable to be on the Copaxone due to the expense. I've submitted the paperwork to the pharm company to get the Copaxone for free but until that comes through, I'm not on it.
I am currently in the midst of an exacerbation that started over the holidays. My neurologist's on-call doctor told me to go to the ER for a direct admit for a course of IV steroids. Got it. The problem is (and I've told my neuro this a few times) that I can't afford it right now. I know that, ideally, that is the way to treat this but for now it just isn't an option, expense-wise and because I'm getting ready to start a temporary assignment in a few days and my fiance, kids, and I need the money desperately. My question is this: have any of you been treated for an exacerbation on an outpatient basis? At one time, it was mentioned that oral Solu-Medrol was an option but my neuro has now taken this off the table and is refusing to listen or meet me halfway on a treatment plan. The exact quote was: "Unless you agree to be hospitalized for this, I'm not going to treat you." So I'm left frustrated and feeling like crap.
Any thoughts? Is my neuro being exceptionally inconsiderate and should I try to keep fighting this? Am I in the wrong here? I feel like I need some new perspectives.