This Is MS Multiple Sclerosis Knowledge & Support Community

Hi,

I'm new (my first post!) to this forum. My PCP referred me to a neuro because my face started tingling and I was getting pins and needles sensations throughout my limbs. I'm exhausted all the time, I can't form sentences very well (frequesntly), I get "brain fog" very frequently as well. After she checked my eyes my face went all tingly, mostly on my right side. She noticed I have more feeling on the left side of my face. After that appt my face tingling got worse, 3 days later it lost a lot of feeling (only on my right side). She rec I go to ER for a CT scan, that was negative. I had an MRI of the brain a few days after, that was negative too, so I saw the neuro. He did and EMG and NCV of my limbs, both negative, and an MRI of the cervical spine, negative as well. My eyes don't focus all of the time and sometimes my right eye will hyper focus on 1 object, but nothing else. PCP said I have nystagmus, but the neuro didn't see it.

The burning sensation, pins and needles, and muscle cramps have plateaued on my limbs, but now I have this gosh awful, very concentrated, "lightning bolt" sensation through out my scalp. My face has lost more feeling and now the left side, (only the lower half) is starting to go numb as well as the inside of that cheek. TMI...I'm having issues with my bowels now.

I met with the neuro again today and he referred me to another neuro who specializes in MS. The soonest appt is in May.

I know this isn't in my head, but man, I almost wish something would show up to validate these awful sensations I'm feeling. Has anyone had a negative MRI and gone back a few months later to find a positive one? MS is the best condition that fits the bill with all of these symptoms (that I know about thus far). Any advice or similar stories would be appreciated.

Hi! i a have an "MS" friend here who have similar condition like u. Her MRI scans always came back normal whenever she got an attack. But her symptoms is MS like symptoms. So the doctor gave her a diagnosis of MS. She had exacerbations whenever she got her period.

She had steroid to treat her exacerbations. And it helps to improve her symptoms.

But do u aware that other disease could have the same symptoms like MS? Like mercury poisoning.

Thank u.

Welcome to ThisIsMS, Ashbeast. I agree with you, this isn't in your head!

I had symptoms and repeated normal MRIs for two years before a neurologist finally saw lesions on my fourth MRI and diagnosed me with MS. It is not uncommon for MRIs to be normal in the beginning; there are members at this website who had the same experience, for some it took even longer for the diagnosis. All the best to you.

Thank you for your responses! Until my appt in May I'm going to journal all of my symptoms. Thanks again and take care!
Xoxo
Ashlee

Hi Just a quick message to let you know for the first 14 years or so all my scans (12 of them) (brain, spine and LP results) were all normal.
I had lots of symptoms though during that time. some quite severe but nothing showed.
In 2009 my biggest relapse to date happened and all my scans became positive as well as my LP now showed oligoclonal bands. I got my diagnosis.

It might be a case of you documenting your symptoms, look after yourself and just get checked yearly or during when the symptoms flair.

I wish you well

L x