Life choices = MS Diagnoses
Posted: Wed Mar 20, 2013 12:25 pm
Hi all,
I'm totally confused and have no Idea where to start with my post. I'm 40 years old and I was told about a week ago by my GP that I have 3 lesions on my brain and she wants to send me to a neurologist to confirm MS diagnoses. I was at work when she called me to tell me. I had no idea they even thought this was a possibility. I thought she was looking at my thyroid. When I said MS??? Are you sure?? I didn't even know you thought it was MS where did this come from. She said well we found 3 lesions on your brain and not to worry but she wanted me to see a neurologist ASAP. I have no family history of MS. The only think I knew about MS was seeing things on TV. I just flashed to a wheelchair. After reading on line I've been a little more educated about MS but yet VERY confused because everyone is different. I read my MRI report and have my first neurologist appointment April 4th. I have no Idea what to expect. Does the lesions mean I have MS? I'm really worried and not sure what to do. I have no family history of MS and for so many years I have felt like a hypochondriac. This might sound crazy but after reading about MS I almost was revealed that maybe I will finally start to feel better.
Here is a little background.
I had a gastric by-pass over 10 years ago. I knew when I made the choice to have weight loss surgery I would have to make some big commitments and things wouldn't be easy. Years struggling with what doctors say are "normal' issues after weight loss surgery I'm wondering if I not only altered my stomach but also altered my brain chemistry. I'm really beating myself up over many choice I have made. While still trying to look forward and not behind. Could weight loss surgery have contributed to my MS diagnoses?
The past 4 years have been doctor after doctor.. Illness after illness. I have had chronic fatigue, depression anxiety, ADD all started around lets say 30. I've been treated for hypothyroidism for 20 years, I've taken V-B12 shots monthly after my bypass. I had Clostridium difficile CDIFF bacteria infection that almost killed me 4 years ago, It was undiagnosed for a year I was called at home on the weekend by a doctor that wasn't even mine. They said they never seen that infection in someone so young. It has came back every year for 3 years and Last year at this time my gastro finally thinks he got it. About a year ago is when I was finding it very hard to walk up stairs, get out of bed, and finally the start of 2013 my fatigue got so bad I found myself so tired I wanted to lay on my floor in my office. I've missed many days of work because of my fatigue and just feeling sick all the time. January my nausea was so bad I was vomiting every 3 hrs or more. I had no faith in my GP because of many misdiagnoses that I just made an appointment with my gastro. He told me I don't think it has anything to do with your stomach it has to do with your head maybe vertigo and suggested I talk with my GP. I was so frustrated with my GP that I wasn't sure what to do. I have told her for months I didn't feel well and my legs are swelling but she never did anything. It was always something I needed to rest, I was stress, I needed to watch what I was eating. All good points. She did a bunch of blood work and ordered an MRI(that I thought was for my thyroid). My V-D was 13 so that made her think I had something wrong with my thyroid she sent me to a Endo and Diabetes doctor and I also did the MRI. The Diabetes doc told me because of my gastric by-pass I'm not absorbing nutrition and that I'm malnutrition and I needed to take 5000 of V-D every day and get more Calcium. I left her office feeling very battered because of her lack of empathy. I went to get my MRI Thinking ok they are looking at my Thyroid imagine my shock when I get the call at work staying I have MS. She said well at least it isn't brain cancer. WOW I said yes your right. But she gave me no Idea what to expect and was all my symptoms for years MS, is 3 lesions a lot and is that a concrete diagnoses? I'm sure I will find out more after my appointment but I can't stop thinking about what I should be doing, Should I tell family or friends. Will this finally explain how I've felt for so many years? When I don't feel good I think is it something I can be doing different am I hurting my self even more.
Thank you everyone for reading my story. Any input would be very much appreciated.
I'm totally confused and have no Idea where to start with my post. I'm 40 years old and I was told about a week ago by my GP that I have 3 lesions on my brain and she wants to send me to a neurologist to confirm MS diagnoses. I was at work when she called me to tell me. I had no idea they even thought this was a possibility. I thought she was looking at my thyroid. When I said MS??? Are you sure?? I didn't even know you thought it was MS where did this come from. She said well we found 3 lesions on your brain and not to worry but she wanted me to see a neurologist ASAP. I have no family history of MS. The only think I knew about MS was seeing things on TV. I just flashed to a wheelchair. After reading on line I've been a little more educated about MS but yet VERY confused because everyone is different. I read my MRI report and have my first neurologist appointment April 4th. I have no Idea what to expect. Does the lesions mean I have MS? I'm really worried and not sure what to do. I have no family history of MS and for so many years I have felt like a hypochondriac. This might sound crazy but after reading about MS I almost was revealed that maybe I will finally start to feel better.
Here is a little background.
I had a gastric by-pass over 10 years ago. I knew when I made the choice to have weight loss surgery I would have to make some big commitments and things wouldn't be easy. Years struggling with what doctors say are "normal' issues after weight loss surgery I'm wondering if I not only altered my stomach but also altered my brain chemistry. I'm really beating myself up over many choice I have made. While still trying to look forward and not behind. Could weight loss surgery have contributed to my MS diagnoses?
The past 4 years have been doctor after doctor.. Illness after illness. I have had chronic fatigue, depression anxiety, ADD all started around lets say 30. I've been treated for hypothyroidism for 20 years, I've taken V-B12 shots monthly after my bypass. I had Clostridium difficile CDIFF bacteria infection that almost killed me 4 years ago, It was undiagnosed for a year I was called at home on the weekend by a doctor that wasn't even mine. They said they never seen that infection in someone so young. It has came back every year for 3 years and Last year at this time my gastro finally thinks he got it. About a year ago is when I was finding it very hard to walk up stairs, get out of bed, and finally the start of 2013 my fatigue got so bad I found myself so tired I wanted to lay on my floor in my office. I've missed many days of work because of my fatigue and just feeling sick all the time. January my nausea was so bad I was vomiting every 3 hrs or more. I had no faith in my GP because of many misdiagnoses that I just made an appointment with my gastro. He told me I don't think it has anything to do with your stomach it has to do with your head maybe vertigo and suggested I talk with my GP. I was so frustrated with my GP that I wasn't sure what to do. I have told her for months I didn't feel well and my legs are swelling but she never did anything. It was always something I needed to rest, I was stress, I needed to watch what I was eating. All good points. She did a bunch of blood work and ordered an MRI(that I thought was for my thyroid). My V-D was 13 so that made her think I had something wrong with my thyroid she sent me to a Endo and Diabetes doctor and I also did the MRI. The Diabetes doc told me because of my gastric by-pass I'm not absorbing nutrition and that I'm malnutrition and I needed to take 5000 of V-D every day and get more Calcium. I left her office feeling very battered because of her lack of empathy. I went to get my MRI Thinking ok they are looking at my Thyroid imagine my shock when I get the call at work staying I have MS. She said well at least it isn't brain cancer. WOW I said yes your right. But she gave me no Idea what to expect and was all my symptoms for years MS, is 3 lesions a lot and is that a concrete diagnoses? I'm sure I will find out more after my appointment but I can't stop thinking about what I should be doing, Should I tell family or friends. Will this finally explain how I've felt for so many years? When I don't feel good I think is it something I can be doing different am I hurting my self even more.
Thank you everyone for reading my story. Any input would be very much appreciated.