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Does change of diet really work?

Posted: Sat Apr 06, 2013 2:47 pm
by calkeat
Hi all I am 3 months diagnosed and have been reading a lot about different diets than can help with MS, just wondering if anybody has actually had good results from this? it seems the Paleo diet is very popular but seems very extreme and I'm not sure I could stick to it :? what are your experiences or diet tips......

Re: Does change of diet really work?

Posted: Sat Apr 06, 2013 4:07 pm
by lyndacarol
There are many diets which are designed for MS and are essentially low-carb; among these is the book, The Gold Coast Cure, by Andrew Larson, M.D. and wife Ivy Ingram Larson. Also, look into the diet and story of Dr. Terry Wahls on her website (http://www.terrywahls.com). She is currently conducting trials of the diet and exercise program that helped her.

I myself am investigating diets that will lower my insulin level – I haven't found the perfect answer yet. Most recently, I have been looking at the ketogenic diet.

Re: Does change of diet really work?

Posted: Sat Apr 06, 2013 5:16 pm
by jimmylegs
hi there :) my diagnosis had a lot to do with malnourishment from veganism so yes change of diet made a huge difference for me.

my vegan xp also biased me strongly against diets that omit things like red meat, eggs, and dairy, since I hadn't had any of those for over a decade and yet I still got sick.

my diet is different than most ms diets out there. today I ate two eggs with veggies for breakfast, a bowl of tomato potato bean soup with half a sausage sliced into it for lunch, and for dinner: a giant mixed salad dressed with balsamic vinegar, herbs, olive oil and flax oil, plus topped with cranberries, sunflower seeds, walnuts and a little feta cheese, WITH a homemade venison/pesto/kale/feta burger and sweet potato homefries sautéed with chopped onion.

it's all whole food, home-made, nothing to excess. life can be good on this kind of diet :D I am way healthier now.

silly example:
in 2006 I landed on my head in a bad snowboarding crash and I ended up in an mri machine having a full on episode and getting dx'd with ms.
in 2013, the other day actually, I landed on my head in a bad skiing crash and nothing happened at all, except I need knee surgery :S hehe

Re: Does change of diet really work?

Posted: Sat Apr 06, 2013 6:40 pm
by tzootsi
There are lots of websites relating to diet and ms. Some of the most popular:

http://www.direct-ms.org/

http://www.swankmsdiet.org/

http://msrecoverydiet.com/?q=node/1

The rules can vary depending on who you believe, but the most common ideas are:
No Gluten
No Dairy
Lots of veggies and fruits, especially kale, spinach, broccoli, berries
Lots of fish
Minimal red meat
Cut out junk foods

Re: Does change of diet really work?

Posted: Sun Apr 07, 2013 3:31 am
by Cholderby
I'm so glad you asked, I've been wondering the same thing!

Somehow I found this site: http://www.thepaleomom.com/2012/05/modi ... mmune.html
On modifying paleo for autoimmune diseases. The only trouble is that I don't like the answer :roll: . No eggs, nuts, seeds, tomatoes, chilies, eggplant, wine, etc. and then I got to thinking, lets say I did all that, how would I even know if it was working? Like you, I am newly diagnosed. I've got one exacerbation behind me. So if I went on an extreme diet and didn't get sick for a year would that be the diet? The drugs? The course of the disease? If it wasn't such an extreme diet I would just try it but I wonder if its worth the price.

One of my initial symptoms was tongue numbness and the loss of taste. Although I am happy I got that back, it would make an extreme diet a lot easier.

In the meantime, I've decided to focus on "nutrient dense" foods so I can feel like I'm doing something. Also, it couldn't hurt, right?

I'd be interested to hear what course you decide upon.

Re: Does change of diet really work?

Posted: Sun Apr 07, 2013 5:37 am
by Barry
Cholderby wrote:I'm so glad you asked, I've been wondering the same thing!

In the meantime, I've decided to focus on "nutrient dense" foods so I can feel like I'm doing something. Also, it couldn't hurt, right?

I'd be interested to hear what course you decide upon.

That's fun part of all this. Does ------- make any difference? Nobody can say for sure. After looking at many of the no this – no that diets, I figured no way, I'd starve or hate eating. So ya, I eat whatever I want, just some stuff in smaller amounts and go heavier on the veggies and fruits and take a few supplements.

Healthy eating isn't that hard and cooking with fresh stuff is fun anyway. No heat-and-eat, no soda, no salt. Of course going to a restaurant or pizza or whatever is a nice treat a couple times a month. We gotta have some fun and that can include bacon and eggs once and again.

I figure if whatever seems healthy and doesn't give me the poops, why not? The bottom line is doing what I can to have a happy immune system.

Calkeat, you may want to spend some time reading up on jimmylegs' ideas about nutrition and regular blood monitoring.

Re: Does change of diet really work?

Posted: Sun Apr 07, 2013 5:42 am
by jimmylegs
c, it says no seeds even?? i can't really deal with the full on paleo or the allergen avoidance premises in the first place. good idea to focus on nutrient density c :) check out IF ratings too. lots of info on http://www.nutritiondata.com about anti inflammatory foods :)

(haha the site just held up my post in case i wanted to review new content - that's you barry thanks for the referral ;) ... if i have any 'no' rule, it would have to be 'no/minimal processed foods' ... YAAAA bacon and eggs are my life :D i have a bacon budget/ration though. 12 slices a month max. and, nitrate free bacon sadly is just not the same)

Re: Does change of diet really work?

Posted: Sun Apr 07, 2013 8:15 am
by erinc14
minding your mitochondria


Re: Does change of diet really work?

Posted: Mon Apr 08, 2013 4:24 am
by daverestonvirginia
You asked "Hi all I am 3 months diagnosed and have been reading a lot about different diets than can help with MS, just wondering if anybody has actually had good results from this?" I have been on the Best Bet Diet for over seven years now and I believe it has helped me. If only look at the removal of junk food from my diet, I believe that has been very positive. I should mention I take Copaxone, and vitamin d, but no symptoms in seven years.

Re: Does change of diet really work?

Posted: Mon Feb 22, 2016 7:13 pm
by msmything
Hi Guys!!! WOW, But I just HAD to tell you about my recent experience with diet.
I was feeling worse than EVER, but isn't that just how it goes for us? I'm a huge proponent of 'what can we do for ourselves?'
I was intrigued by the Wahl's Protocol, a book/concept that came out about a year after this thread was last used. It's basically a twist of paleo, more raw veg. I had gradually lost function in my right leg. I couldn't lift it up to put pants, socks on, bathing suit off. Within 3 weeks, I was able to left my leg nearly to waist height. I had originally said that I would try the diet for a month. With that result, I figured well this is now my life.
Anyway, it's been a year, 32 lbs gone, feeling good, I decided to introduce some grain, gluten free things. Still a really quality diet, but I started to feel like garbage again, so now I'm back to strict adherance. I don't cheat a SINGLE bite or I won't know what's to blame/credit.