Is this MS? Many tests and dr. visits unanswered - help
Posted: Thu May 16, 2013 10:06 am
Man, this has been a rough, rough road. I know you all are not doctors, but I am really having so much trouble getting a diagnosis.
Over the past year I have had intermittent neck pain, radiating down my neck. Stiff for a few days, often when waking up.
Then about three months ago - I was on a plane and noticed my right thumb twitching, some neck pain and stiffness in my wrist and some numbness in my hand - a little stiffness on left arm side but primarily right - from there all downhill. I admittedly went online and saw all kinds of posts about scary neurological diseases. Anxiety went sky high, had some stressful life events happen, insomnia - the works.
During the past month, I've had numbness/buzzing for three days in my face. The part that is scary though is that I now have severe neck/back pain between my shoulders - down both arms and into my hands. Fasculations in legs, my hands feel weak and clumsy and I feel like cement is weighing down my arms - my forearms ache - I have had many days where my forearms down to my hands feel like they are asleep - all pins and needles feeling. Clinically there isn't any real weakness - I can still perform functions, I can run- but it feels forced when I am trying to do things like button a shirt. The pain though comes and goes, sometimes I feel like I can't move. Sometimes I feel like my mouth is buzzing - I am in pain all the time now - this pain wasn't there when this first began. The fatigue is new too.
Testing: I had an EMG to rule out Carpel Tunnel - no irregularity there, I had an MRI of my neck and brain w and w/out contrast - CLEAN w/ exception of slight protuding disc - but Neuro said it was too small to cause anything other than some neck pain. All of my blood work has come back clean - protein levels, all of my vitamin/mineral levels, thyroid, and even ANA, and CardioCRP -all normal. Two visits with Neuro who did the basic in-office tests. So basically, the neurologist says this is not neurological - he says no MS, no parkinsons. But why am I twitching - why do I feel like I can't move my arms and why am I getting so much worse every day- why do I have numbness? I am so so scared of what is happening. I have a 3 yr old and a 10 month old - and I am so scared that I am going to be crippled or worse, but so far no one can tell me what is happening.
Even though my MRI's were clean - is there a chance this is MS? thank you for reading my story.
Over the past year I have had intermittent neck pain, radiating down my neck. Stiff for a few days, often when waking up.
Then about three months ago - I was on a plane and noticed my right thumb twitching, some neck pain and stiffness in my wrist and some numbness in my hand - a little stiffness on left arm side but primarily right - from there all downhill. I admittedly went online and saw all kinds of posts about scary neurological diseases. Anxiety went sky high, had some stressful life events happen, insomnia - the works.
During the past month, I've had numbness/buzzing for three days in my face. The part that is scary though is that I now have severe neck/back pain between my shoulders - down both arms and into my hands. Fasculations in legs, my hands feel weak and clumsy and I feel like cement is weighing down my arms - my forearms ache - I have had many days where my forearms down to my hands feel like they are asleep - all pins and needles feeling. Clinically there isn't any real weakness - I can still perform functions, I can run- but it feels forced when I am trying to do things like button a shirt. The pain though comes and goes, sometimes I feel like I can't move. Sometimes I feel like my mouth is buzzing - I am in pain all the time now - this pain wasn't there when this first began. The fatigue is new too.
Testing: I had an EMG to rule out Carpel Tunnel - no irregularity there, I had an MRI of my neck and brain w and w/out contrast - CLEAN w/ exception of slight protuding disc - but Neuro said it was too small to cause anything other than some neck pain. All of my blood work has come back clean - protein levels, all of my vitamin/mineral levels, thyroid, and even ANA, and CardioCRP -all normal. Two visits with Neuro who did the basic in-office tests. So basically, the neurologist says this is not neurological - he says no MS, no parkinsons. But why am I twitching - why do I feel like I can't move my arms and why am I getting so much worse every day- why do I have numbness? I am so so scared of what is happening. I have a 3 yr old and a 10 month old - and I am so scared that I am going to be crippled or worse, but so far no one can tell me what is happening.
Even though my MRI's were clean - is there a chance this is MS? thank you for reading my story.