This Is MS Multiple Sclerosis Knowledge & Support Community

Hi all,

I'm trying to get a better understanding of the symptoms that I'm currently having and I've been doing extensive research on MS and other demyelinating diseases as I wasn't sold on my Dr's 'It's probably MS' diagnosis and will be getting a second opinion in due course.

For those of you who experience numbness / tingling, how often does the numbness occur? Does it last all day? Does it sporadically come on and then go?

For me. I could be doing anything from sitting, lying down, walking, running or even sleeping. Irrespective of the activity, the right side of my body develops a tingle (the alarm that an episode is about to come on) and for the following 15 or so seconds, I lose most of the feeling in my right arm, hand, leg and foot. It feels more like paralysis (to a degree. I've had several episodes of sleep paralysis in the past and it's quite similar; however, I do have a little amount of control with these episodes). Whilst having an 'episode', I notice that I need to take deeper breaths too. Once it's over, my body is fully functional 'til the next episode.

Yesterday, I kept a log of them and had 55 episodes throughout the day. So approximately 3-4 an hour. About a week ago, I had three courses of Methylprednisolone that hasn't helped at all. I spoke to my MS nurse yesterday and asked if she had dealt with any other patients who had experienced symptoms such as mine. She paused and then gave me the 'MS effects everyone differently' which I completely understand; however, she couldn't confirm that she'd seen these symptoms before with any of her patients and I'm struggling to find any resources where MS patients have had similar symptoms.

So I ask the lovely people of 'ThisIsMs', what does your numbness feel like? What are the exact symptoms?

Thanks in advance.

Giancarlo.

Hi Giancarlo. I can totally relate to the whole going numb on the right side. Its like being half a person in a way. For me when I started having the numbness/tingling the right side of my face was numb and it was weird because so was the right side of my tongue and my food would taste weird on the right side. The numbness lasted all the time until my relapse was over(which was like 2 months). The tingling came and went during the relapse. My second relapse my right leg went numb, which it stayed pretty much the whole time of my relapse and the tingling would happen when I would run or step down hard(like going down steps or jumping). The numbness is weird. It feels as if the body part is not even there. When it was in my right leg I limped a little. But your numbness/tingling sounds like the MS kind, just a little different from mine. Hope this helps.

BowlofSup wrote:Hi Giancarlo. I can totally relate to the whole going numb on the right side. Its like being half a person in a way. For me when I started having the numbness/tingling the right side of my face was numb and it was weird because so was the right side of my tongue and my food would taste weird on the right side. The numbness lasted all the time until my relapse was over(which was like 2 months). The tingling came and went during the relapse. My second relapse my right leg went numb, which it stayed pretty much the whole time of my relapse and the tingling would happen when I would run or step down hard(like going down steps or jumping). The numbness is weird. It feels as if the body part is not even there. When it was in my right leg I limped a little. But your numbness/tingling sounds like the MS kind, just a little different from mine. Hope this helps.

Thanks for sharing your previous symptoms, it's greatly appreciated.

I'm hoping that these symptoms subside soon. They've been present for the last 3 weeks now. Averaging 55 eposides a day, it's a total of 1,155 episodes; and that doesn't include the ones that wake me up during my sleep.