Diagnosis "possible ms"????
Posted: Tue Jul 18, 2006 1:52 am
Hello there everybody,
Just thought I would come in and say hi and tell you a bit about myself. I have been having problems for a few years now. Started with severe fatigue, tingling in toes, numb hand, swallowing issues.
I then had an attack of vertigo and an ongoing feeling of unsteadiness which lasted for months. Failed neuro exam pathologically brisk reflexes, positive rhombergs, etc. Mri came back clear and neuro said must be anxiety go and see psychologist which I did, who incidently felt there was something "physical" happening.
This year was diagnosed with restricted breathing pattern of unknown origin and upper airway dysfunction, hand was almost paralysed went to another neuro who was convinced this wasn't related to the other "episodes" and felt it was motor neurone disease!!!!!!!!!!!!!!!!!!!!!!
Went back to see her today for all the results of a zillion tests and everything was clear including the mri!!!!!!!!!!!!!!!!!!!!!
All she can say is "possible ms" Is this sort of a diagnosis or is this just something they say to shut us up from asking questions they don't know how to answer. She said they WON'T diagnose without lesions on mri but from what I have read any Joe blow who doesnt' have symptoms could have numerous lesions. I don't get it!!!
I said can't you have ms and a clear mri and she said they are the minority. I thought it was 5 - 10% she said much less. Anyway how do they work out who the minority are??? She said because I have no lesions it is probably a benign form but she doesnt' live inside my body. I';m so upset I could scream!!!!!!!!!!!!!!!!!!!!!
Has anyone else had clear mri's?????
Just thought I would come in and say hi and tell you a bit about myself. I have been having problems for a few years now. Started with severe fatigue, tingling in toes, numb hand, swallowing issues.
I then had an attack of vertigo and an ongoing feeling of unsteadiness which lasted for months. Failed neuro exam pathologically brisk reflexes, positive rhombergs, etc. Mri came back clear and neuro said must be anxiety go and see psychologist which I did, who incidently felt there was something "physical" happening.
This year was diagnosed with restricted breathing pattern of unknown origin and upper airway dysfunction, hand was almost paralysed went to another neuro who was convinced this wasn't related to the other "episodes" and felt it was motor neurone disease!!!!!!!!!!!!!!!!!!!!!!
Went back to see her today for all the results of a zillion tests and everything was clear including the mri!!!!!!!!!!!!!!!!!!!!!
All she can say is "possible ms" Is this sort of a diagnosis or is this just something they say to shut us up from asking questions they don't know how to answer. She said they WON'T diagnose without lesions on mri but from what I have read any Joe blow who doesnt' have symptoms could have numerous lesions. I don't get it!!!
I said can't you have ms and a clear mri and she said they are the minority. I thought it was 5 - 10% she said much less. Anyway how do they work out who the minority are??? She said because I have no lesions it is probably a benign form but she doesnt' live inside my body. I';m so upset I could scream!!!!!!!!!!!!!!!!!!!!!
Has anyone else had clear mri's?????