Re: Interesting Gut Microbiome results
Posted: Sat Jun 03, 2017 3:16 am
My symptoms have been slowly progressive since diagnosis 18 years ago, walking, stiffness, fatigue, bowel etc. My neuros used to say I was benign but my new neuro tells me Im SPMS. I work full time (12 hours a day) 5 days a week, support a family etc. My walking is down to about 1/2 a mile, I see an osteopath (who tells me my movement is getting better), go to the gym 4 times a week and have a daily regime of stretches which help. Ive never taken any drugs for MS.
Good that youve found inconsistencies in your gut bacteria compared with the general population, however it would have been better if it was similar to my inconsistencies..nothings easy
I mailed Howard Weiner (actually his assistant) http://weinerlab.bwh.harvard.edu/ who apparently knows a thing or 2 about MS and gut bacteria to ask him if he is aware of Verrucomicrobia/Akkermansia but so far no reply...not that surprised as Im pretty sure they're busy and probably dont reply to direct requests from strangers.
I also had a consultation with a FMT clinic who have done FMT with MS sufferers but they dont keep the gut microbia data...argggg...no idea why??? But apparently they are working with the Gut Project team so at least they are heading in the right direction.
Good that youve found inconsistencies in your gut bacteria compared with the general population, however it would have been better if it was similar to my inconsistencies..nothings easy
I mailed Howard Weiner (actually his assistant) http://weinerlab.bwh.harvard.edu/ who apparently knows a thing or 2 about MS and gut bacteria to ask him if he is aware of Verrucomicrobia/Akkermansia but so far no reply...not that surprised as Im pretty sure they're busy and probably dont reply to direct requests from strangers.
I also had a consultation with a FMT clinic who have done FMT with MS sufferers but they dont keep the gut microbia data...argggg...no idea why??? But apparently they are working with the Gut Project team so at least they are heading in the right direction.