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VERY URGENT - NHS postcode Lotteries

Posted: Tue Sep 12, 2006 8:22 pm
by robinredbreast
Please can anyone help with the request below?

If so please can you ring the MSRC Office as soon as possible on 01206 505444 or 0800 783 0518 so that we can put you in touch with journalist, as as you will see time is of the essence. squiffs

I'm a disabled freelance journalist. I sometimes write for the BBC's Ouch website, but at the moment my day job is as a producer of podcasts for Channel 4 Radio. The podcasts are part of C4's venture into the radio market, short audio-only programmes available online after key TV programmes. The ones I'm making are all on contemporary current affairs
issues.

The particular reason I'm contacting you is because I'm producing something to coincide with an upcoming C4 programme looking at NHS postcode lotteries access to treatments and so forth.

These podcasts tend to be what we call 'single voice' affairs - I take a microphone to an individual and record them talking in their own words, about their own experiences. I'm very interested in this one being from the point of view of someone who is fighting for or has fought for a particular sort of treatment.

I know Beta Interferon continutes to be an issue for people who have MS, and I wondered if MSRC might be willing to help me get in touch with people who have experience of fighting for beta interferon who might be interested in taking part in a podcast.

The catch is that my schedule is - as always - very tight, and in an ideal world I am looking for someone who is able to take part in recording on Thursday or Friday this week.

Posted: Wed Sep 13, 2006 12:38 am
by JFH
Is there still a postcode lottery for BInt in England and Wales. The NICE guidelines are pretty clear in my view. Two relapses in past year, definitive diagnosis of RRMS (or SPMS in case of Betaferon/Beatseron) and you're eligible for the risk-sharing programme.

Posted: Wed Sep 13, 2006 5:24 am
by SarahLonglands
That's what I thought, except that with SPMS you often have to fight with your neuro.......Sarah