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CIS? APS?

Posted: Wed Jan 17, 2018 11:27 am
by koneall
I vaguely remember reading that a small number of MS victims have one attack and then no more. Then saw a medical video where the doctor says it'll happen again eventually, that there's no such thing as CIS. I was diagnosed end of July, almost 6 months ago. No recurrences of the vertigo since then. So how long do I wait til I can think this nightmare is over? Also I have antiphospholipid antibody syndrome which caused pleurisy and pulmonary emboli. I've had recurrences of the emboli pain regularly, the last attack one week ago. I'm on monthly infusions of Tysabri for the MS and take Pradaxa 150mg twice daily for the APS.

TIA,

kaypeeoh

Re: CIS? APS?

Posted: Wed Jan 17, 2018 11:35 am
by ElliotB
"So how long do I wait til I can think this nightmare is over?"

At this point, no one has ever been cured so the possibility of another attack is certainly possible but not necessarily certain in the future. Never let your guard down. Most people have a mild case and will not have many attacks.

Re: CIS? APS?

Posted: Wed Jan 17, 2018 1:12 pm
by koneall
Thanks, I copied this:

"When CIS is accompanied by lesions on a brain MRI (magnetic resonance imaging) that are similar to those seen in MS, the person has a high likelihood of a second episode of neurologic symptoms and diagnosis of relapsing-remitting MS. When CIS is not accompanied by MS-like lesions on a brain MRI, the person has a much lower likelihood of developing MS."

So, I had an MRI at the 3-month mark. It showed no new lesions but a lot of old lesions. So I guess I'm not outta the woods.

Re: CIS? APS?

Posted: Fri Jan 19, 2018 11:23 am
by koneall
I've read that MS causes specific lesions seen on MRI. APS also causes lesions but in different areas of the brain. So maybe I have both, MS and APS.