Excessive water intake with MS
Posted: Fri Feb 02, 2018 6:26 am
Good Morning all,
I was diagnosed with MS about 3 years ago now (I am 31 now) and have certainly been through my bouts with all kinds of symptoms and drug combinations above and beyond my Copaxone to rectify issues. With that said, over the last year or so I have been seeing a change in my body where I suddenly need to intake massive amounts of water. To give you a bit of my background a bit, I am an avid cyclist (mainly mountain biking but I do road as well) and runner. Prior to my current situation I COULD (I preface could for a reason) go every day with one or two cups of water and be perfectly fine. Now, over the last year I have seen the "need" for water increasing. When I say increasing I am talking about liters (like 6, sometimes more). I was typically able to put in my hard work out drop all the excess water from my system and be good to go. It should be stated that I also subsequently started experiencing water retention as a result and this has also become more and more of a problem. Moving forward to today, I go into more or less drinking fits. I cannot quench a thirst, dry mouth, extreme pain from bloating and now abdominal weight gain. Up until roughly 6 months ago I was 153 pounds and with all this going on I am not creeping up in weight and have now hit 163 (I know its not a lot but it keeps going up and in the wrong direction) while maintaining my daily cardio work. I was put on chlortalidone to help with the retention but we are dealing with water intake that the kidneys just cannot process.
I have had blood test after blood test and nothing has come back with a red flag. While I do have IBS-C issues as well that is controlled by amitiza, milk of magnesia and suppositories, I am of the belief that this issue is unrelated to that since it started way before the water issue. My primary doctor is very good and willing to try anything to help me. My neurologist and endocrinologist seem to just blow this issue off. I am going to be making an appointment with an MS specialist at Mt. Sinai, but as we all know those appointments are months out. I am looking to see if anyone has had symptoms like this and what treatments might have been recommended. Another thing I should mention and my primary doctor is taking the bull by the horns and setting up a abdominal CT for this. My T-Spine MRI report mentioned that T2 hyperintensity was seen anteriorly adjacent to the right kidney, which may represent interposed, fluid-filled colon. Has anyone ever had or seen this? Know what it means?
Any help would be great. Realistically above and beyond my IBS which is more of a pia than anything else and this water intake, I have been able to settle many of my other issues that has become evident since my diagnosis.
Thank you for anything you might be able to provide.
Chris
I was diagnosed with MS about 3 years ago now (I am 31 now) and have certainly been through my bouts with all kinds of symptoms and drug combinations above and beyond my Copaxone to rectify issues. With that said, over the last year or so I have been seeing a change in my body where I suddenly need to intake massive amounts of water. To give you a bit of my background a bit, I am an avid cyclist (mainly mountain biking but I do road as well) and runner. Prior to my current situation I COULD (I preface could for a reason) go every day with one or two cups of water and be perfectly fine. Now, over the last year I have seen the "need" for water increasing. When I say increasing I am talking about liters (like 6, sometimes more). I was typically able to put in my hard work out drop all the excess water from my system and be good to go. It should be stated that I also subsequently started experiencing water retention as a result and this has also become more and more of a problem. Moving forward to today, I go into more or less drinking fits. I cannot quench a thirst, dry mouth, extreme pain from bloating and now abdominal weight gain. Up until roughly 6 months ago I was 153 pounds and with all this going on I am not creeping up in weight and have now hit 163 (I know its not a lot but it keeps going up and in the wrong direction) while maintaining my daily cardio work. I was put on chlortalidone to help with the retention but we are dealing with water intake that the kidneys just cannot process.
I have had blood test after blood test and nothing has come back with a red flag. While I do have IBS-C issues as well that is controlled by amitiza, milk of magnesia and suppositories, I am of the belief that this issue is unrelated to that since it started way before the water issue. My primary doctor is very good and willing to try anything to help me. My neurologist and endocrinologist seem to just blow this issue off. I am going to be making an appointment with an MS specialist at Mt. Sinai, but as we all know those appointments are months out. I am looking to see if anyone has had symptoms like this and what treatments might have been recommended. Another thing I should mention and my primary doctor is taking the bull by the horns and setting up a abdominal CT for this. My T-Spine MRI report mentioned that T2 hyperintensity was seen anteriorly adjacent to the right kidney, which may represent interposed, fluid-filled colon. Has anyone ever had or seen this? Know what it means?
Any help would be great. Realistically above and beyond my IBS which is more of a pia than anything else and this water intake, I have been able to settle many of my other issues that has become evident since my diagnosis.
Thank you for anything you might be able to provide.
Chris