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Posted: Tue Oct 10, 2006 5:10 am
by Chris55
I do need to add one "P.S." regarding my daughter's "natural" treatment...everything she is taking is treating the exact same symptoms as your husband, Mormiles. Just find that interesting. Her treatment is for about 5 1/2 months. She ends in December. I will be anxious to see how she does at that point in time. Should she need a "next step", I have copied/pasted your comments Mormiles to share with her. I am just SO CONVINCED this is not an autoimmune disease--what I consider a "catch-all" phrase when all else fails!

I have posted before, but to repeat myself, I have an "incurable" disease, autoimmunity suspected and there is pretty much no treatment. They did come out with a very harsh chemical, the application of which is barbaric and the results are pretty underwhelming. I completely "cure" my episodes with nothing but diet change and supplements. Works like a charm every time. I have intersistial cystitis. It can be so bad one can actually qualify for social security disability. The country's leading urologist states: It has nothing to do with nutrition. Bah humbug to them all!!!

Please keep us posted Mormiles. I am fascinated with your excellent post! Chris

Interstitial cystitis

Posted: Tue Oct 10, 2006 6:01 am
by mormiles
Hi Chris, If you haven't already, you really need to visit CPn Help.org. I'm a bad girl to do point toward JimK again, but he also has interstitial cystitis as do some other users of that website. This illness has been linked with chronic Chlamydia pneumoniae infection. The word "incurable" is becoming a red flag for me...I think it really means "this is a tough nut to crack and we don't know what the hell we are doing." Cypriane

Posted: Wed Oct 11, 2006 5:02 am
by Chris55
I will visit CPn help. However, I got the IC thing licked--totally! I had the start of a flare-up several weeks ago. I was out-of-town and my supplements were at home! The instant I got home, I took a dose and woke of the next morning completely burn-free! I continued to take my supplements that day, but the problem was gone for good!

You are correct..the docs don't know what in the hell they are doing in many areas. Their pride, however, prevents them from admitting it. I found it tragic that when my daughter shared all of her other non-MS symptoms, they either ignored her or insinuated they were in her head. One typical LD symptom--severe chest and ribcage pain--she shared with her MUSC doc (one of the most prestigious hospitals in the southeast). He advised her to see a heart doctor--geeezz, she was 24 years old!!!

All I know is in researching this disease aftermy daughter was diagnosed, what impressed me the most is just how much they DON'T know!

I will keep you advised on my daughter's progress with her natural treatment. So far, so good! However, I would give my eye teeth to see her on Dr. Weldon's program!

Thanks for sharing!